House visit from GP.

[Mocarey]

I got a call from one of the doctors at our practice today asking if she could visit me and discuss my recent hospitalization. Apparently this is a new directive, anyone who has been in hospital more than twice a year is being visited and getting all their details up to date so as to help make it easier at times of illness, they wanted to give my details regarding, the NHS 24, the ambulance providers,etc Also it was noted the antibioitcs that worked best for me and that obviously I am probably aware when I really need to be admitted. She also asked if anyone had power of attorney and if I had a living will. I felt a wee bit strange with that question. I am not quite ready to throw in the towel just yet. But at the same time if I was totally unable to communicate I wouldn't want to be kept alive if there was no chance of any quality of life. Have anyone of you had one of these visits. I know things are a bit different here in Scotland but I just wondered.

[Hidden]

Sounds like they are keeping a good eye on you Mocarey, its good to know you are not sent home and forgotten.

I'm not in Scotland so I can't really offer any input regarding similar experience. Last time I was in hospital I was referred back to GP for ongoing care and health monitoring. Not been asked about a living will yet but I do sometimes wonder if I should get that organised now as its one less thing out of the way.

Best wishes BC

[Mocarey in reply to Hidden]

You are probably right and maybe it is something I should actually think about too.

[cofdrop-UK]

Not heard of it here in the UK Mo, but a domiciliary visit for a non cf bronch has got to be an improvement. I can see why you would feel strange hun at some of the questions raised - good idea re power of attorney though and updating a will. Thank you for giving me food for thought.

Are you still struggling so Mo or are you on an more of an even keel?

With loads a love

cx

[Mocarey in reply to cofdrop-UK]

Hi Sue, Things wer a little better for a few days but beginning to struggle again. This last year has been a b****. As you know I do havet o be admitted a couple of times a year but I usually get a bit of respite for a while afterwards, not so this time. I hope you are doing so much better now. Lots of Love

mo xx

[cofdrop-UK in reply to Mocarey]

It certainly has been a b of a year for you hun. I hope your medics get their thinking caps on and give you some respite. Miss our chats 'cos let's face it we're both born bletherers! You're a tough wifey Mo and I hope things improve for you soon.

Love cx

[KingoftheCocktails]

Not heard of that before, but I see as a good idea, which I will bring up at my next CCG meeting

KOTC

[appyalison]

Sounds good to me. I rang my gp yesterday to update her. My consultant decided to drop my thyroxine, I became very hypo so i upped the level again. I thought, if i visited my gp now she would be clueless as to what's been going on for last 6-7 months. She said she gets no results from the labs and no information from the consultant. She agreed that I should refuse to drop thyroxine in future if he says so because I have to go on what it feels like for me. only the Thyroid Stimulating Hormne has been measured and that is very crude and tests the function of the pituatry gland anyway. I have more symptoms that have appeared over the bank Hol. She has said she'll try and find some results of blood tests from the lab. I said that I was concerned about turning up ill at the surgery and she would not have a clue what had been going on. She was surprised I have not been put on steroids yet. I am resorting to taking co-codamol to keep me going for now. Would GPS need to visit if results of hospital investigations were sent to them? Just a thought... Alison

[Mocarey in reply to appyalison]

I don't understand such a lack of communication between your con and your GP. Anytime I see my con a letter is sent to my GP with everything that is discussed and if I have been a hospital in patient i am given a letter for myself and one for my Gp on discharge. Incidentally yesterday in Scotland a system was put in place that all results , blood tests etc from all hospitals you have had to attend recently are available on computer, saves a lot of time and should be a great help to doctors.

[appyalison in reply to Mocarey]

Sounds great to me but suspect part of the problem is the lack of a secretary. I did once get a letter when I had been seen by a young chap (he called in my con half way through). This letter took so long being typed that I was seeing the con again within days. Not enough time to think about what was there let alone act on anything. It could be that I have not been signed off from the hospital for anything as yet. Who knows? I like your system. Thank you for your reply. Alison

[cofdrop-UK]

I don't get that either Alison - results should all be on screen and discharge note usually now sent direct to gp with copy for patient.

Hope things improve for you.

love cx

[appyalison]

Thanks for reply. Part of the problem could be the secretary issue. He sends nothing. I was concerned about the lack of communication which is why I updated the doc. How could she treat me if she has no idea what I have had done. She had no idea I am being sent to gastro for an opinion on the reflux/large hiatus hernia or that, because I am anaemic again, he is asking the gastro for gastroscopy (again) and colonoscopy looking for evidence of bleeding and/or polyps or bowel cancer. Any treatment, therefore, is still awaited. I told her my eyes are deteriorating and she offered to refer me but con had already said he would when i asked him. Whether or not he has done this, I have no idea and can't check with secretary. That is why I registered new symptoms of ear, jaw and cheek pain indicating a problem with salivary glands. Taking co-codamol for this as i can't take pain relief tablets - they affect the gut. Doc thought that was probably the best bet for now. For sure, it is a problem. Feels like I am in nowhere land at the moment. I am keeping going though ... onwards and upwards. Alison

[appyalison]

Hi Carroll, thanks for the heads up for co-codamol but it is about the only thing I can take for pain. Ibuprofen nearly killed me in 1999, my poor bowel almost gave up. I am very careful about pain relief and only take something when really required. I have not had the camera. Maybe that will happen after I have seen the gastro. Glad to know it is pain free. Thank you. Alison

[appyalison]

Thank you Carroll, you take care too. Alison