Yesterday was the PR assessment - my husband has done one before we knew what to expect and off we went. In truth it wasn't a good day to be doing a walking test - he has been really breathless for a few days and it was stressful getting there. Having said that the good news is that the FEV lung function has not declined still sitting at 28%, his blood pressure was good (the tablets are working) and his SATS were as they usually are 93% resting. BUT the walking test was dreadful. The nurse stopped it within two minutes because his SATS had dropped to 80%. She asked him to do it again after a rest and had to stop it again - same problem. It was then suggested that he do the test with oxygen. This time it was better. It was very matter of fact - the nurses didn't realise how devastated my husband was. (He is brilliant at hiding it!). I know all the logic behind it and I know it may only be temporary - sometimes patients using it only during exercise in PR. Oxygen now ordered and on its way to us. Though he only has to take it to the classes which start in 3 weeks.
I know that some of you are on oxygen 24 hours and I know this is not the end of the world. It came as such a shock, there was no discussion. It just seemed fait accomplit. Ah well, want to scream we go on holiday on Thursday - the shock has left him reeling, he is very SOB today. I have tried to reassure him that it is probably as much the change in air pressure and weather as much as anything else.
He is worried about the children but I have talked to them and explained this is not because Daddy is getting more ill it is to maintain his quality of life.
Thanks for listening............ TAD xx