I'm new to all this as I was only diagnosed in March 2013 with Pulmonary Fibrosis.
My first consultant was very vague about the disease,treatment,and generally day to day living.
I asked to be referred to another consultant who had an entirely different approach by explaining about the disease, treatment of the symptoms etc:. Subsequently I have just been accepted on a Pulmonary Rehabilitation Programme. I attended my first class last Wednesday which is 1hr of education and 1hr of exercise. Enjoyed the education but boy oh boy am I aching after an hour of gentle exercise. Still I will persevere as I am told that building up muscle strength around the lungs is an important part of breathing easier!