Would like to say thank you and a big warm hello to all of you.

I care for my husband whose was diagnosed with COPD 10wks ago. Since then its been a roller coaster of a ride, three visits to A&E and two hospital stays. He as been on what they call hospital at home rest with COPD nurses visiting sometime once a day or every couple of days for periods of two weeks at a time. The problem seems to be each time he attends hospital as an emergency they give him steroids he his fine when on them however within the 48hrs of the course finishing he cant breathe and needs to go back. It breaks my heart to see him suffering and having these set backs. I have been out of my mind, they cant seem to get him stabilised on meds. I have learned so much and taken comfort from this forum, and also had little titters from your humour comments. Thank you all.

20 Replies

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  • Hi, fronzoni - like your name. It sounds as if you are having a really hard time, but you are right in coming to talk to us. Any help, we can offer. love annieseed xxx

  • Glad you found some information, support and humour when you needed it fronzoni. Let's hope the medical lot get their act together and get your husband onto an even keel. The BLF Helpline is always a great place to get specific information if you need it. Or throw out a general question or blog and someone will come along and help to the best of their ability. :) xx

  • Hi from me too fronzoni, your hubby has been in the wars. Hopefully he will be stabilised soon and you won't be worrying so much. Look forward to seeing you on the forum in the future. Libby x

  • Hi and hope you feel a little better soon xxxxx

  • Hello Fronzoni

    I'm so sorry that you are having such an awful time at the moment because your poor husband is really unwell.

    Hopefully, the medical profession will, soon, sort out the medication he needs.

    Everyone here will be helpful to you. They have been wonderful with me.

    Look after yourself as well as your husband.

    Lots of love and hugs

    Annec

    xxxxx

  • Thank you for your kind warm wishes. He is only 58yrs young and was a heavy smoker, but also worked in dusty environments for many years, which cant have helped. xx

  • Hi there I am also a newbie I also have copd stage 2 got DX 3 months ago sending you hugs and wish you both all the best x

  • Hello and welcome!

    Hope they get him stabalised soon!

    Remember to take care of yourself please. This will undoubtedly take it out of you too!

    Best wishes

    Kevin X

  • Hi Fronzoni. It often takes a while to get someone stable on the various medicines. They will get it right soon. I am afraid a lot of it is trial and error because everyone is different. I wish hubby well and don't forget to look after yourself too.

    Bobby xxx

  • Take care Fronzoni.

    Peta

  • Hi and welcome fronzoni ! :)

  • hello :)

  • Hello and welcome to the site Please keep us updated Bobbys advice is very good.

    Please make sure you look after yourself too

    Juliex

  • Hi there and welcome, I'm a novice but I can't help thinking it would be so much better if they could taper off the steroids. Do call the helpline, they can point out some questions to ask his medics. P

  • Thank for your warm thoughts comfort and wishes. I am trying to look after my self but finding it difficult, got meds from GP for anxiety not eating or sleeping well at the moment. Its dealing with the lifestyle changes and feeling so alone. X

  • Thank for your warm thoughts comfort and wishes. I am trying to look after my self but finding it difficult, got meds from GP for anxiety not eating or sleeping well at the moment. Its dealing with the lifestyle changes and feeling so alone. X

  • ...bless you...it can't be easy...if i was your neighbour ..i would help you....stress and worry..not good for either of you....ask for lowest dose of sleeping tabs..i take 3.75 Zopiclone....it does help me to cope ...i find if i don't sleep well my breathing is really bad the next day....if you not eating take complan in milk...they will help you to maintain,your strength and hubby too........take each day at a time...we are always here.....regards Debby (corrazon).................x

  • Thank for your warm thoughts comfort and wishes. I am trying to look after my self but finding it difficult, got meds from GP for anxiety not eating or sleeping well at the moment. Its dealing with the lifestyle changes and feeling so alone. X

  • Hello and welcome to the site. x

  • Hi fronzoni and welcome. You have come to the right place. I do hope your husband will be put on the right meds very soon and will be more stable. Sending good wishes to you both. xx

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