Over the weekend, I wrote about a eureka moment, putting my mum's breathlessness down to a faulty nebuliser. Well she has had 3 and half days of a fully working one and is no better at all. As well as her four prescribed nebulisers a day, of ventolin and respontin, she has been having extra ventolin nebs.
The matron, who came on Friday, said the extra ventolin was fine and as she was wheezy upped her steroids to 30mg. My mum has felt more breathless since last weekend, so she started her rescue antibiotics ( co amoxyclav ), and finished the course on Friday.
Saturday just gone and she was dreadful, she couldn't even stand without gasping for breath, so I gave her an alternative antibiotic, just in case there was an infection, ( I don't think there is ). Although she isn't quite as bad as Saturday, there has been no significant improvement and our matron is away until Wednesday. I will try and get her to agree calling GP out tomorrow if she is still crap.
I don't know what else can be done to improve her breathlessness, and I am so scared that this is going to kill her. She is now just receiving palliative care and I know she's not going to live for the next ten years, but I'm not ready to lose her yet.
She doesn't want to go into hospital as there is nothing they can do there that can't be done at home, apart from iv antibiotics, and if she hasn't got an infection now, she will have if she goes in. Her consultant said if she has bad exacerbation, she needs to be hospitalised to have her oxygen levels monitored, but last time she was in, she was on a bloody surgical ward where the staff didn't have a clue about copd, and she was lucky to have her sats checked every four hours. We have a sats monitor at home, so I can do that.
She wants to die at home, and I am scared if she has to go into hospital, she won't come out. I am determined for her to have what she wants, but that may mean a premature death.
I just don't know what would be the right thing to do. She's so very tired, is it kinder to let her go than try and get her back to how she was a fortnight ago.
If you reply to my post and I don't respond, I am not being ignorant, but I will be around at my mums house but I will reply tomorrow