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Can anyone remember the name of the person that had the endonbronchial lung valve trial?

ingy profile image
ingy
5 Replies

H.

i I have just seen the consutant with a view to getting this procedure. I know there is a long way to go to see if I am suitable, but the ball is rolling so to speak. I just wanted to know if the person was on oxygen at the time. I am going for the full breathing tests on wednesday, then go back to the clinic in 2 months time. I was looking for some insight into what is entailed, so if anyone can help it will be much appreciated.

ingrid

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ingy profile image
ingy
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libby7827 profile image
libby7827

johnwr has had pulmonary lung valves,

blf.healthunlocked.com/blog...

Libby

Lynne1955 profile image
Lynne1955

Well done Lib xx

martin1945 profile image
martin1945

Hi Ingrid, I underwent EBV placement, which unfortunately was not successful in my case because I suffer from "Collateral Ventilation" (lots of info on the net for CV). Hopefully you will be more successful. There are videos on YouTube which shows the whole process, just type in "Endobronchial valves". Stay well. Martin

caroleoctober profile image
caroleoctober

Hello Ingy, I am doing the same as you. I have had the ct scan and a lung function test and have seen my consultant who has written to the specialist in Cardiff who does the procedure and I am waiting to here from her. Can I ask how old you are? I am seventy, I thought I may be too old but obviously not. Message me if you want to. Keep smiling

Carole x

ingy profile image
ingy

Thanks everyone, very helpful. Martin I am so sorry your wasnt successful. Carole I am 65.

best wishes to you all xx

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