New lung cancer survey for patients and carers - please take the time to fill it in to improve diagnosis, care and treatment in the future

The UK Lung Cancer Coalition (UKLCC) - a group of organisations, including the BLF and our friends at Macmillan, Cancer Research UK and the Roy Castle Lung Cancer Foundation - are conducting a survey amongst lung cancer patients and their carers, as part of our work to improve experiences for people affected by lung cancer.

If you have some time please help us by completing the survey if you have lung cancer or care from someone who does, or by sharing this anyone you know who is affected by lung cancer. The more people who complete the survey, the more we can do to ensure lung cancer treatment in this country reflects what patients actually want and need, so thank you very much in advance for your support.

For more information or to complete the survey, visit: blf.org.uk/News/Detail/New-...

Thank you.

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  • Two friends died of lung cancer, one went undiagnosed for ages, his doctors told him he'd caught a tropical disease :-( So sad. They weren't close friends but sweet people, far too young too.

    I really hope the survey helps present and future patients.

    koala x

  • I found one of the questions in the survey a bit difficult to answer. The question was about treatment received in hospital.

    I had two operations for lung cancer - one in 2009 and one in 2011.

    The two experiences were very different from each other.

    My first operation in Derriford was at the end of April 2009. I was in hospital for a month (discharged with a drain still in place) on 28 May. The treatment I received from the Consultant and his team, the nurses and the nursing staff was second to none. Absolutely first class care. I was able to walk when I left hospital. The lobe removed from my right lung was cancerous.

    My second operation in Derriford was in September 2011 - wedge sections were removed from my right lung. The treatment I received on this visit was, again, wonderful from the Consultant and from the SRNs. The treatment I received from the nursing staff was bad (I must say that there was not the same amount of staff as in 2009 - a lost less). I was discharged on a Friday evening (about 7 o'clock) even though I had difficulty standing upright and also had difficulty breathing. I advised on of the surgeons (an assistant to the Consultant I think) that I felt very unwell. She told me not to lean on the reception counter!!! and did not take me seriously. The following morning (about fourteen hours later) I was taken by ambulance to Treliske Hospital in Truro and had a stay of ten days there. I was diagnosed as having a DVT and PE. The treatment I received in Treliske was wonderful. I left Treliske with a zimmer frame. I was advised in Treliske that the wedge sections removed from my left lung had not been cancerous.

    So, I had two very different experiences in the same hospital (Derriford in Plymouth).

    One further thing I would say is that the food I received in Derriford in 2009 was really nice. However, the food I received in 2011 was dreadful. I suppose the quality of the food seems unimportant but I think that it is important.

    Thank you for the opportunity of letting me have my say.

    Kind regards and thank you or being there.

    Annec

    xxxxx

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