Choose from the list below the 3 most... - Lung Conditions C...
Choose from the list below the 3 most important issues you feel the BLF should provide support with?
MarkPilling622 VotersPlease select all that apply:
These are my three choices for your poll
These are my choices based on being a career and now a sufferer
Thanks for opportunity to input - Den x
All of the subjects mentioned are important of course.
My three choices
Some people including myself are given a diagnose of CPD and no information. Had a breath test machine wonderful nurse who did it but I asked her if my numbers are bad or good she said she doesn't know anything about them, should be more referrals to copd clinics ect
I feel exactly the same, no information. I could have been referred to pulmonary rehab. I also look after my husband. Juggling time spent travelling there and back, would have increased my stress. Fortunately, the nurse agreed walking the dog was good exercise. Yes, no information.
Sometimes you have to be assertive and ask for what you need.
I assume that you have similar services to ours in your area, so please ask your GP or practice nurse for a referral to the COPD team who will give you support, and can refer you on to Pulmonary Rehab. An alternative may be a "chest" nurse at your GP practice
Hope this helps
I'm so sorry you haven't been given enough information. If you'd like to talk to one of our respiratory nurses you can call our helpline on 03000 030 555.
Best wishes,
Bethany
I am a carer with an ostrich husband!!!!
Yeah actually all on list but I thought better to vote for what lots of people need emotionally as well as medically
A lot of the other things like cough induced incontinence can be dealt with at Doctors , Financial by social workers or Council. Travel by Resp Care. Staying in work is if you are well enough. Oxygen if needed can be delivered to your work if you have the energy, so that would be a request again from local oxygen people.
We wouldn't meet the criteria for social work input in this area.
I think these three issues are the main ones for COPD sufferers as most of the time we are isolated in our homes, which makes us depressed and of course depending on what help you get from your GP and nurses, very little good advice which makes us anxious. I keep having chest infections one after the other and taking antibiotics and steroids which although they help with the chest infection does'nt help me to not keep having them. I have Virtual Ward Nurses that come in once a month (sometimes) to keep a check on me but they just take BP and oxygen readings and write them down, ask how I am and then off they go. I send samples of sputum to the Path lab via my surgery which get lost so that I don't know whether the antibiotic in my rescue pack is working. Apart from a couple of weeks I have been ill since Oct last year after I had the flu jab. I went to the Asthma nurse last week for a check up which she said was very good and two days after I come down with a cold so yes, anxiety and depression play a big part in COPD patient's life.
Two people with different lung conditions in one household, mutual carers, struggling to cooe with daily living needs.
Based on own experience
These are my votes which are important to me and my partner
We are still waiting for free prescriptions for Astma sufferers. Signed petitions, but still never hear anything.
This is my selection in the poll, these are important issues for me x
Tis is my selection in the poll. These are issues which impact on my existence
I find that living with uncertainty is one of the worse things. Should I go to the surgery? When will this cough stop? Do I need antibiotics. Is the pain under my ribs connected to my copd. If I was told what to expect, perhaps I'd cope better.
Please go to BLF course or get your GP or Nurse to refer you too Pilmonary Rehab. You will learn such a lot ....x
Thank you Linda. My doctor wrote 2yrs ago asking that I go to Pulmonary Rehab and I head nothing. I saw a new respiritory doctor this week who was surprised I had not been and he said he'd refer me again so I live in hope.
Those three are important to me.
Those three were the ones I chose.
Thank you
Everything is important but those are mine at the moment suppose it depends on your illness
Funny how I have voted for the top three, but they are the most important to myself. Others will of course have different views.
I think all the choices have value.
I could have ticked them all!
I wish it concentrated on specific issues only like sputum, using oxygen and nosebleeds, using other meds.
Hi 4help2.
Do you mean you would like us to do a poll asking about the most important symptoms or the ones that have the biggest impact on your life?
Or would you like us to focus more on symptoms an individual aspects of living with a lung condition?
these are my choices, being i used to nurse and was an athlete and now i cannot walk up my own stairs
I'm so sorry to hear that kapre.
I'm surprised that the "impact on carers" came relatively low in consideration. Could be perhaps that there are comparatively few COPD'ers with carers?
All the options are important but I have settled for the three indicated.
all of these are so important , so these are my 3 .
I am a carer for my disabled husband ,
also fight against depression .on -going ,
which makes daily living difficult enough having recently diagnosed with copd !
we all have good days n bad days , no matter what ,so just gonna say .............
chin up ! and walk tall x x x
Very good idea to ask us to vote. It was difficult to choose because I didn't want to be selfish and go for just what was best for me. Hope you get the votes you need, and thank you.
Hilde72
These are my personal choices. Hope it helps
I have just done the second of my two day workshop/ course with the BLF. A big thank you to Helen. She was so informative. She answered everyone's questions. She has given me such confidence now. I feel I can walk now, ( before, I thought my heart was going to stop ). It isn't .....
If you are offered this course, please take it up, it will help you no end. There wasn't a single person there, who didn't learn something, about, lungs, pursed lips, medication and how to use them correctly, building confidence etc.
I would definitely recommend it, followed by Pulmonary Rehab. ( my assessment is next week).
In Portsmouth we also have Breath Easy, Trooper, and CRIS. All to help and get advice from.
I hope that you are all well
Linda
I'm really glad you got so much out of it Linda. I'll make sure Helen sees this.
Best wishes,
Bethany
The two I marked seem to be the issues I am having at the moment.
I could have ticked them all
Everyone when ill sometimes feels anxious and depressed, and it is good to have help with daily living, and .sometimes we need help with the right medication or supplements which contain the right ingredients for us. Some helpful advice regarding having a break away from the troubles and meeting likeminded friends would be good.
Thank you Linda, I will. I'm afraid at 77, I'm of a generation that's slow to make a fuss. To be honest my GP is definitely overworked but now having been refereed to a respiratory clinic I am much more hopeful.xx
I have been going through online NHS therapy and find it has helped
Thanks, just knowing blf is at hand,when you either need advice or just someone to talk to is fantastic & reassuring,well done & many thanks to all the blf team
What list?????????
These are the 3 most important choices I have chosen for your poll.
My 3 choices
If given a chance I recommend going on pulmanory rehab course I've just completed mine and learnt more in 4 weeks than years from doctors .been great help!!
My answers based on own feelings ?
Daily living ,depression,and impact on carers
