Climbing a steep hill in May 2016, with my 17 AV Speed Group, I 'felt strange and weak' - never felt like this before - so straight to A+E.
Not much found, but a CT Angiogram in July 16 revealed severe cardiac atherosclerosis, with a calcium Agatston score of 1315 - super high!
At this stage, I was under the Nurse Led Cardiac Team at my hospital - and after taking a Full History and Lipid Profiles etc said I probably had Familial Cardiac Atherosclerosis.
And since my Total Cholesterol was only 3.0 (on a Vegan diet) statins were deemed as not needed. I was started on Diltiazem, Clopidrogel and GTN spray (prn)
In November 16, I had the final test - the Coronary Angiogram and 3 cardiac vessels were found to be severely blocked at between 74-94% and I was referred for a Bypass.
The specialist there, without asking for or reading my history, put me on Simvastatin 10 mgs. I asked why, as my total cholesterol was only 3.0? But, no answer, he just walked away!
Just before the Bypass I took just 3 doses of 5 mgs and straightaway my Av Speed dropped from 17 to 12 AV. I told my GP about this and he changed it to Rosuvastatin.
I had the Triple Bypass In February 17 and it was a great success - thanks NHS!
However, the aches continued and I told my GP about this many a time, but he didn't stop them.
So, I stopped them myself in April 17.
However, the muscle aches have continued and progressed.
90 % of the aches are in the Vastus Medialii - the cycling muscles!
Looking 'everywhere' for the reasons why, last week I FINALLY came across something that might explain why - this Study from 2004.
It describes an 8 year Study of 22 professional athletes who had Familial Hypercholesterolaemia, with total cholesterol of between 8-10, and they agreed to try statins, after being told about the potential muscle aches and being carefully monitored throughout.
And the result was that only 6 of the 22 (about 25%) could tolerate any statin, without muscle aches. Any athlete who complained about muscle aches, was immediately taken off them. ( WHY wasn't I?)
Compared to about 80% of the general population.
So, the remaining 16, who had muscle aches, even after a change in statin, were advised to try a non-statin remedy, such as Ezetimibe.
Now, I am not a professional athlete, but I have been a lifelong 'competitive' cyclist, from the age of 14 - 71 now.
I was able to ride at 25 Av till the age of 45. Then, of course, slightly slower each year.
So, at age 50 I could ride at 23 AV - age 60 at 20 AV.
At age 66, pre-statin, I was able to ride with my 17 AV group.
Then, after just 3 doses of 5 mgs simvastatin, my AV speed straightaway dropped to 12AV.
And, it has remained there all these 4 years, with the very occasional ride at 13-14-15 AV.
So, my question is this - Why was I not warned about this by the prescriber - that most Athletes do not tolerate statins, because of muscle aches?
If I was told, I certainly would have refused them.
After all, this Study was already out there, and should not the prescriber have known about it?
I've now seen many other similar studies.
My other Query is this?
What tests should be done, prior to taking statins?
I did not have any.
And finally, why did my GP, a fellow cyclist, not take me off them?
Here is the Study I am referring to.
Subject: Professional athletes suffering from familial hypercholesterolaemia rarely tolerate statin treatment because of muscular problems
Thank you for reading!