Restart bp meds: Hi saw Dr again... - British Heart Fou...

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Restart bp meds

MrsP70 profile image
14 Replies

Hi saw Dr again ( practice Dr who hasnt seen me before) on Friday and he said if I don’t get my bp down I will be off to see the nephrologist by the end-of the year .aAll bp meds have made me really ill and they had to be stopped however Agreed once again to try one I had before Losartan , if I recall that one made my hair fall out ! He has started me on half a tablet .

The thing is I saw on twitter last might this drug has been recalled any one heard this?

If we don’t find one to suit I will have to accept the consequences ... kidney failure

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MrsP70 profile image
MrsP70
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14 Replies
MichaelJH profile image
MichaelJHHeart Star

Which was the one before Losartan and which was mentioned on Twitter?

MrsP70 profile image
MrsP70 in reply to MichaelJH

Losartan made my hair fall out

MrsP70 profile image
MrsP70

Thankyou for the reply not so worried now

MountainGoat52 profile image
MountainGoat52 in reply to MrsP70

I've been on Losartan for 8 years now. No issues whatsoever. I can't say the same for other BP drugs.

MichaelJH profile image
MichaelJHHeart Star

Which BP medication are you taking now?

MrsP70 profile image
MrsP70

started losarten on friday

MichaelJH profile image
MichaelJHHeart Star in reply to MrsP70

Makes sense now as I read it that you were taking the one you tried before Losartan! 😀

MrsP70 profile image
MrsP70 in reply to MichaelJH

Sorry about that 😂

Ianc2 profile image
Ianc2

Did your Dr advise you on lifestyle changes you can make to minimise the need for drugs?

MrsP70 profile image
MrsP70 in reply to Ianc2

Only a couple of things .. I am learning more on this forum . I dont cook with salt or put salt on anything anyway ... he said I need salt, this confused me . i eat very little meat.

Bp is in the 150 range am mainly a vegetarian ,

I am in the UK and good as the NHS is you cant demand anything .

i am verging on 3b CKD which is the problem.

1 need to lose some weight which I am trying to do.

It is annoying that you don’t get advice just twice a year checks.

seasider18 profile image
seasider18 in reply to MrsP70

I know someone with only one kidney and a problem with the other. Losartan is the only BP med that suits her and me. In her case it has to be from a certain maker as different brands contain different filling compounds.

There is a procedure called renal denervation that has been around for several years where radio waves are used on the kidneys and it can reduce BP quite a bit. Another is a paper clip-size device called a Rox coupler (a reversible procedure ) that is inserted into an artery in the groin. It diverts blood to a nearby vein, relieving the strain on the artery and reducing the heart's workload. The Lancet finds the device successfully works to stabilize blood pressure in patients.

I always demand of the NHS otherwise I would be ignored. As one GP I had said 'Patient Power' they don't like that. I tried to get on the renal denervation trial at Imperial College but my BP was not consistently high enough. The tests did show that I had aortic stenosis with my valve 76% closed so I got a valve replacement out of it before it sneaked up and was found too late.

seasider18 profile image
seasider18

How high is your BP ?

Nephrologists are BP experts and some run specialist B. P. Referral units at major hospitals and will do a wide range of tests.

MrsP70 profile image
MrsP70 in reply to seasider18

Bp is in 150 range and here ( uk) they don’t refer you until the next stage of CKD I also wasn’t told for 9 years that I had CKD which was very annoying as I Could have helped myself with diet etc. after finding out things on here.

Ianc2 profile image
Ianc2

salt is an electrolyte - your body needs some to function efficiently, in the same way that your brain runs on glucose - but not too much in both cases. Try and get to see a BANT registered nutritionist to look at your diet. Losing weight is usually made easier if you can get a good exercise pattern going, regular walking for example, perhaps a mile day to start with?

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