On the list for an ICD: Hi All, I was... - British Heart Fou...

British Heart Foundation
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On the list for an ICD

DaveTR
DaveTR

Hi All, I was diagnosed with Heart Disease (Dilated Cardio Myopathy (DCM)) 16 years ago after an episode of Atrial Fibrillation (AF) which was fixed with a chemical conversion (Amiodarone) and have been stable until recently. I've been on Beta Blockers and ACE inhibitors to manage the condition. I had an an episode of Atrial Fibrillation (AF) in December 2016 which was sorted with Cardioversion. Following an MRI Scan my consultant has put me on the waiting list for an ICD. I've found the posts and questions really useful on here. :-)

15 Replies
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Hi that’s wot I’ve got and I’ve had a icd fitted back into af again got to have a cadioversion again n put my bisoporol up to 12 5

DaveTR
DaveTR in reply to Wodney1966

Hi Wodney, I hope the cardioversion and change in meds sorts you out. I'm on 10mg of Bisoprolol. I've been told if I have repeat episodes I may need ablation treatment. Only time will tell.

Gillymaccy
Gillymaccy in reply to DaveTR

Hey I had my 1st Heart attack 17 years ago when I was 37 had another one 3 years ago now been fitted a ICD seen to be doing ok now

Hello. You've probably read replies from me in the other ICD posts here (glad you've been finding them useful) but just in case, thought I'd say hello, I have an ICD and it's all good :) Feel free to fire any questions my way.

Hello, I have seen 1 or 2 replies from your good self :-). Thanks for saying hello. What a great forum

That’s next thing for me ablation if this fails 🙈🙈🙈🙈🙈

Hi, I had a ICD fitted back in August, if you have any questions I am happy to help

DaveTR
DaveTR in reply to Freebird4ever

Thanks Freebird

I had a ICD and wen I was able to have it removed it hurt thoughout my body. My minster at church has to have hers replaced every 10 years and warmed me the pain would be bad.

Hidden
Hidden

Hi like Laura you have probs seen some of my posts, I find the support here brilliant everybody is so helpful and just there when needed, I also have dilated cardiomyopathy, just diagnosed in Feb this year, still in shock,I am waiting on a date any day now to get an icd fitted, a bit scared I have to say but will be glad when it's done x

DaveTR
DaveTR in reply to Hidden

It's always the waiting that is the worst part of anything. Embrace the technology i say :-)

Hi Dave..... welcome to the forum... which I recently found too and it's a great support network. It's great to talk to others who have a real understanding of what you are going through. I too have recently had an ICD fitted. Any questions you have we are all here to help.

Karen

DaveTR
DaveTR in reply to Heartlady1

Thanks Heartlady1

I have a pacemaker fitted 6 months ago. Seems fine but prefer not to have it. Is ICD more invasive, or very different?

So is your question about ICD insersion .. or just general chat about your condition..?

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