Im new to this disease so I have lots of questions. Are the rest of these symptoms all PSA too?

[IBSsucksallthetime]

Positive for Psoriatic Arthritus, HLA-B27 positive (genetic strand good , ANA and all other test negative except mri of feet. No signs of skin psoriasis but I do have msymptoms on my feet and nails, I have had bad pain and knots in my lower back for 18 years plus, it seems the other pain in my back kinda moves around from upper to lower but not where the knots are. Sometimes the knots are down but almost every day at some point the back pain restarts.I also have worsening neck pain and stiffness, along with ankle and foot pain and swelling.

For the past 10-15 years I’ve had horrible hip pain. Sometimes in the bursa, (was told I have bursitis and given injections) but often it feels like it’s in the ball joint of my hip. I have the pain sometimes in outer hip (above side of thigh, the part that touches the bed if you lay on your side) and sometimes in the upper buttocks 3/4 distance away from between them going towards outside of hip. Both the back and the hips (both sides but one side is worse) are so much worse pain than my feet, could these other things also be PSA?

Thank you all so much for any advice, or answers. I’m in the US,

[IBSsucksallthetime]

I forgot to mention that I was diagnosed with fibromyalgia when the pain in my back started. Was negative Ana then. Have been told “mild arthritic changes” on x-rays since then on all of back, neck, hips.

I Also have IBS which is somehow all connected too 😳😳😳

Thanks again

[Shana8]

sorry to hear about your struggles! ❤️ To me that sounds very much like my own PSA. Coping with it for over 20+ years. Started in my feets and hands and then years after pso on my scalp and a year after that full body pso.

But the hip pain and lower back I remember since I was a teenager. No sign of anything on x ray though. My old rheuma doc tild me, that Psa often do not change bones and therfore not visible, but the pain can probably come from the tendons: the fiber that connects bones to muscles.

I'm now on Methotrexate and biologics called Brodalumab (don't know the english name)

It has helped lower my pain and my skin is fully clear. I still take pain killers though.

Hope you can get some more help from your doctors/specialists! It's always difficult to live in pain.

Sorry if my english is not correct as I'm from Denmark.😉🇩🇰

Have a nice day 🥰

[IBSsucksallthetime in reply to Shana8]

thank you! I thought so to about the back, hip and neck pain being from the arthritis. I had my appointment with Rheuamtologist today, and he said it’s most likely my fibro in back and neck, because nothing on x ray or mris I just had. He is doing a new mri on sacral ( I know that’s the wrong word, sorry) joints in lower back and hips now, scheduled for early next month. He gave me a generic diagnosis of Undifferentiated spondylitis. So he knows there’s inflammation in there, but still not positive it’s coming from PSA or RA or AS or reactive arthritis. He said as it gets worse we may be able to get a for sure diagnosis of which arthritis it is. Thank you 😊

[Shana8]

Glad to hear you are going to have a mri done. But still.. it's a struggle, I know. It sounds as if your Rheuma. is taken it seriously and trying to figure out, what you are dealing with.

I hope you will find useful answers over time.. and send you my best wishes ❤️

[IBSsucksallthetime in reply to Shana8]

thank you so much Shana

[willat]

yes sounds like it. I have PSA and it destroys healthy bone and tissue. I have had both hips replaced now awaiting both shoulders knees and the SCJ a joint at the top of chest will need fixing. Toes are always cold and sore and whole spine knackered with various problems.

[IBSsucksallthetime in reply to willat]

I’m sorry to hear of your struggles, thank you for your reply. It helps to hear what people who have the same problems have struggled with. Best wishes willat, I hope you have so,e relief with the next surgery. My toes are always cold and sore too!

[willat in reply to IBSsucksallthetime]

seeing orphapedic surgeon on 28/9 to hopefully have injections due to lengthy wait for shoulders. Also rheumatoidologist on 29/9 about next steps as methotrexate buggered my liver results after 3 months.

Soldier on people.

[rmros]

Hi. This could be me talking. I have PsA with axial involvement, but it took a long time for the latter to be diagnosed. I've had the hip pain since my early 20s (I'm now 44). X-rays, MRIs, spine and pelvis scans, all negative for any hip problem. I felt like I was going mad, I knew there had to be something wrong there - the pain was NOT normal.

Eventually I had an MRI of my sacroiliac joints and that showed bilateral sacroiliitis. Consensus is that the hip pain is referred from the SI joint, and it had improved since I started taking Cosentyx.

Does yours wake you up in the early hours? Sacroiliitis farely common in PsA but they say it's usually unilateral. I'm a bit skeptical about what they say though. Nobody is textbook and expecting them to be means things get missed.

You need a very specific type of MRI to diagnose it, hence why other MRIs on my spine and pelvis failed to pick it up.

I was so certain the problem was my hip(s). The places where I felt the pain were exactly as you describe. Obviously I can't say your problem is the same, but just know that pain can be referred in the most peculiar ways. Good luck.

[IBSsucksallthetime in reply to rmros]

thank you! Yes the pain wakes me up around 4 am, and both hips are affected but the left side is worse. I was given the diagnoses of undifferentiated spondyoarthritis. He’s not sure if it’s PA or PSA but doing the mri to figure it out hopefully. It seems I have symptoms of both but evidence of neither specifically, go figure. Thank you for your response! Good luck to you as well.