I have had a problem with scar tissue, but also something my doc tells me is tethered tendons. In arms and hands, legs and feet. My hand is bad at the moment, the little and ring finger on my right hand got injured in a few falls last October, a lot of bruising and a large lump appeared on back of the hand before Christmas exactly like a fracture but xray showed no break, but my GP is convinced it is probably wrong or needs doing again and nobody knows what esle that ridge on my metacarpals could be. But i don't have an appt to see the complex hand and fracture clinic at the hospital until Feb 8th to investigate.
What is really odd, is that I noticed I was dropping things and breaking things before Christmas and that although all the bruising from my falls had gone, my ring finger and little finger keep curling over and I cannot straighten them and the hand will not flatten at all now. I have been doing physio exercises as instructed for my usual problems, and trying to straighten them actually gives me a sharp pain and pulling sensation nearer my elbow and knotty lumps appearing on my arm underside nearer the elbow....miles away from the injured hand. The doc says the tendons are tightening and have become tethered....it all seems quite odd.
Then last night, my toes kept curling up in bed and I could feel a similar tightening on underside and arch of foot, and going up side of calf....horrible feeling. It feels like i am seizing up, and if I do not keep them flexible and straightened that they could end up getting stuck. At the same time, I have also been having problems with lack of sensatin and weakening down one side from head to toe with a gap somewhere above waist.
I have a friend with exactly the same problem in his hand/arm except he has Dupuytrens Contracture causing it. He has MS but nobody knows why his fingers are contracting. he has to have steroid injections, I know a BD sufferer would probably never get such treatment as it could make it more scarred and worse under even light trauma.
Has anyone else had a similar type of contracting, or tethering of tendons, which was part of their BD or seemed to be happening for no known reason?
I already had blocked and squished median nerves, and other contractures due to excessive scarring after debridement operations (following thrombophlebitis set off by IV and injections etc from pancreatitis treatment) and that has left my hands quite disabled and arms and wrists locked, so I cannot extend arms or use certain fingers or place palms upwardws.....I cannot afford to have the only fingers I have left working on my Right Hand contracting too.
My frustration is that in the past, I had long waits between appointments to sort out any hand problems, and each thing I am now stuck with was as a result of it becoming too late to do anything about. I am told if I had physio before scar tissue cemented, I would not have such bad scarring with my wrists locked and arms unable to extend. I cannot use hands properly, cannot wash and bathe myself or use the toilet due to arms being too short now. At the time it was all tightening and scarring, I was told that I could not have any physio or corrective treatment until after the inflammation, cellulitis and thrombophlebits with massive ulcers had healed.....but then when they had healed, I was told ''ahh its to late to do anything now, as its all scarred and cemented'' as well as 'sorry, but to operate on those to free them up would cause more scarring and Behcet's involvement so too risky''
However, the scarring was stuck at a particular level and slowly tightening, but now there seems to be some sort of odd tendon thing happening and I can feel them tightening all over my body....even in the neck....that is really odd and my docs keep saying ''we don't know what that is''.
Does anyone get the feeling that because of BD, or existing damage docs are more willing to accept you have odd complaints and have less urgency about them so that you end up stuck with them? I am certain that if I had been a ''normal'' patient, I would have had more investigations and corrections of some of the odd things that happen to me. For example, I am sure most people who have an injury about the end of October, do not have to wait and find out if it is broken or not or start attending a clinic mid February.
Sorry, am starting to rant here.....really I just wondered if anyone had got inflamed, damaged or tethered tendons that tightened up, and if early treatment helped...or they got stuck with it. Would also be very interested to see if anybody got Dupuytrens Contracture, for not apparent reason. It does seem to happen to people with immune problems (that I know of) despite being attributed to no reason.