Behcets plus other autoimmune condition? - Behçet's UK

Behçet's UK

5,241 members4,329 posts

Behcets plus other autoimmune condition?

Benne09 profile image
11 Replies

Hi I am just wondering does anyone here have Behcets plus any other autoimmune conditions? If so which one/ones? Am really curious

Hope you are all doing ok right now

😘

Written by
Benne09 profile image
Benne09
To view profiles and participate in discussions please or .
Read more about...
11 Replies
gammyd profile image
gammyd

I was dx with Behcet’s in ‘95. Soon after, I tested positive for Sjogren’s.

Benne09 profile image
Benne09 in reply to gammyd

Thanks for responding x

LotiRamjet profile image
LotiRamjet in reply to gammyd

Me too -

Lettie999 profile image
Lettie999

I have behcets, relapsing polychondritus (affects cartilage) and APS (sticky blood).

Benne09 profile image
Benne09 in reply to Lettie999

Thanks for responding x

debs1963 profile image
debs1963

I gave behcetes

rooser1 profile image
rooser1

hi there- I had neuro behcets symptoms starting at 17 (meningitis) coupled with progressively more and more sensitive sucrose intolerance. While I wont super say that the sucrose intolerance is autoimmune, I am 100% convinced that the two are related, as they popped up together.

any hoo- when i got dx with behcets officially at 25, I was probably in the beginnings of my newest autoimmune disease now, pernicious anemia, as theBW suggests it then but wasnt diagnosed until 31. (im about to be 32 now).

so behcets, sucrose intolerance, pernicious anemia, seems like every 5 years i get a new card which makes me less worried about the old cards LOL

RuthieN profile image
RuthieN

Yes my daughter has Oral Facial Granulomatosis, hypermobillity syndrome

lesleyg profile image
lesleyg

Hi I have Behçet’s and pyoderma gangrenosum (PG) which is apparently also very rare. A couple of dermatologists diagnosed the PG on the same day. The lesions I get have a bright pink ring around them.

SCMW profile image
SCMW

Hi, yes it’s very common for them to co exist. For me FMS and Behcets, my mother IGA vasculitis and undifferentiated connective tissue disease. Potentially APS or Hughes Syndrome. Best wishes

Benne09 profile image
Benne09

Thank you xx

You may also like...

Unsure of bechets or some other autoimmune

prednisone 10mg a day . doctors are confused . They have done all kind of blood tests everything...

Behcet's and Marriage

that have read this far, thank you. For those that reply, your words mean so much more than you can...

Could this be behcets?

So sorry for the lengthy post! I have a range of issues which have been ongoing for many years like...

Ethnicity and Behcet's

white and I was wondering if there are any more African Americans in this group with Behcet's...

Sports with Behcet's

support given here really helpful. I'm 28 and have recently been diagnosed with Behcet's after a...