Otezla: Has anyone tried otezla ? I am going to... - Behçet's UK

Behçet's UK

5,236 members4,325 posts

Otezla

Chelsann21 profile image
5 Replies

Has anyone tried otezla ? I am going to start it soon and would love to know what symptoms it helped with.

Written by
Chelsann21 profile image
Chelsann21
To view profiles and participate in discussions please or .
Read more about...
5 Replies
RayRay121 profile image
RayRay121

I have not. It is next on the list if Humera fails. I hope you find it gives you relief

Lovingdragonflies profile image
Lovingdragonflies in reply to RayRay121

I did. It helped immensely with mouth sores. However, it caused severe diarrhea and intensified my migraine issues. Since it only helped my mouth sores and not any of my other issues I stopped it. I went back on azathioprine to give it another try. It’s not helping though, so I’m now going to try remicade. I hope otezla works for you....

Stm252 profile image
Stm252

It did quite a bit for my joints. Like a good 60 percent reduction which was worth every bit. I had horrible headaches and diarrhea when it started. But it passes. Any sores, which were minimal that I had are completely taken care of. Good luck.

Chelsann21 profile image
Chelsann21 in reply to Stm252

Did you have any genitalia sores ?

Stm252 profile image
Stm252 in reply to Chelsann21

Yes more so than mouth.