Potential Bechet's?: I am plagued by a plethora... - Behçet's UK

Behçet's UK

5,235 members4,325 posts

Potential Bechet's?

MegaNeko profile image
0 Replies

I am plagued by a plethora of various health issues and have had several diagnoses over the years but recently out of curiosity i had my DNA sequenced, this seemed to confirm several of my issues (Autism, ADD)

however as well as my mental health issues i have several physical issues including recurrent pneumothorax, episodes of uveitis and multiple ulcers/cycts (some VERY large which leave permanent "holes" in my flesh) on my groin, nipples and back of my ears mainly. i was investigated for Marfans but the results were inconclusive and put down to a general connective tissue disorder, however the DNA results seemed to show no signs of connective tissue disorders.

There were however several markers for Bechet's and given my symptoms i wondered if that may actually be the cause? further supporting this is that my sister also suffers from similar cysts/ulcers and is currently being tested due to as yet unexplainable periods of severe dizziness and vision issues, from what ive read these could also be related to Bechet's and if its potentially a genetic disorder then it would be possible that we would both be affected.

Just for other information the only other major markers listed were Chron's (my mum has it) myesthenia gravis (my grandmother had it) and Grave's (no known relatives with this) and following a lung operation i suffered nerve damage to my brachial plexus, this was put down to "Parsonage Turner Syndrome" (however i always suspected this was actually just an excuse because they messed up)

Written by
MegaNeko profile image
MegaNeko
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Effects of stress on Bechets

My Bechets was diagnosed in Dec 18 and was under control with colchicine and I was such a high flyer

Fybromyalgia/Bechets advise please

joints. The reason Bechets was mentioned was because I get mouth ulcers and genital ulcers not...

Possible Bechet's

32 years old and currently having a severe flare of pan uveitis which has practically not responded...

Does anyone with bechets have disabling migraines where they can not read or write?

mouth ulcers ands stomach ulcers but my concern is the migraines are unrelated and maybe connected...

Bechets conference Italy 2016

was considering whether to go to the patients bechets conference in Italy in September. Has anyone...