trigeminal neuralgia

[chrissymeg]

Does anyone have trigeminal neuralgia? I woke up with the classic symptoms 2 days ago and it is not going away, it is so painful. I'm reading that it is mostly due to a swollen blood vessel pressing on the nerve...so I'm thinking it is then associated with Behcet's. Does anyone have any experience with this? Thanks!

[DrMaggs16]

Yes, unfortunately I have it attacking my spinal column and right wrist that I experience involuntary tremors in the wrist/hand.

[chrissymeg in reply to DrMaggs16]

Thank you!

[Brichel]

Yes. It comes and goes. Some days it hurts really bad, others like a nagging tingling and some days it goes away. Stress seems to trigger the worst pain. Not like any of us are ever under any stress. Best of luck.

[chrissymeg in reply to Brichel]

Thank you Brichel!

[swanseakev]

Hi Chrissymeg,

I've suffered with Trigeminal Neuralgia for the last 12 years, excruciating headaches that last for days, i am seeing the Nuero team next month as i have started to loose feeling in left hand and forearm

My Rhuemy who referred me back to Neurologists wants to see if it could now be down too Behcets involvement

I was originally told after MRI scan i had a lesion which was causing it

Hope you find answers

Kev

[chrissymeg]

Thank you Kev!