Hi. I'm new here. My wife was recently diagnosed with Behcets having suffered from ulcers most of her life. In some ways its a relief that we now have a greater understanding of why she has so many different symptoms. However, in other ways, nothing has really changed. She is starting to suffer from increasing joint and muscle pains, restless leg and shivers (which seem uncontrollable and come and go at will). In addition she has low iron (and has done most of her life) and has been asked to take iron tablets which cause horrendous stomach cramps. She also takes Colchecine which has reduced the ulcers though not the wider symptoms. The London CfE suggested that she takes Azathiaprine but she is nervous about starting it due to the strength of the drug, side effects and concern that once she starts is it a slippery slope to more drugs. She has also been advised by a second doctor, who has Behcets himself, not to take the drug as her symptoms are probably not bad enough to take such strong medication.
Apologies for the opening up quite so many areas of questions but I'd be interested in any thoughts and suggestions on the above. Particularly how I can help her through all this. Many thanks.