Hair loss and bruising

[B130859]

Hi

Having been diagnosed a while ago with Bechets does anybody suffer with severe pain bruising and hair loss to there head like pic below ??

[Kiwichris]

Yes I get random bruises everywhere that can be very sore and my hair falls out in hand fulls !!! All part of it I think......!

[Samb-s]

Yes, I wake up with bruises, I have long hair but it falls out in handfuls. I don't have bald patches but I hate it. I am constantly sweeping/hoovering up hair. I have an appointment at the beçhets centre of excellence in London next week and was going to ask if this is normal. Your post answers my question xx

[B130859 in reply to Samb-s]

Ah thank you for your reply x

[Funhound]

Hiya yes I get bruising that appears spontaneously on my hands and legs mainly . Gp thinks it's a behcets thing but I'm going to mention it to rheumatologist when I see her in June .

[Alex97]

Yes I get random bruises not sure if it's the behcets. Get really bad hair loss but consultant doesn t associate this with the behcets. I had a b12 test that my gp classed as normal but it was just in range (202) so I started taking b12 supplements and I have significant improvement with hair loss.

[gillianTS in reply to Alex97]

That's very interesting, thank you for sharing.

[billi]

Yes I've been suffering with burning pain and itchiness and red marks on my scalp for at least 10 years and sometimes scabs.....maybe I scratch in my sleep?? Seen docs, consultant and they said not Behcets. Then a few years ago I took photos and luckily also had a few on my head and was told it is Behcets. No specific treatment given just told.....don't wash hair everyday or every time with shampoo and buy a sensitive shampoo. Works well for me but still get flares of it if I'm anxious or achy.

Billi

[B130859 in reply to billi]

Hi Billi

Yes I've been told it isn't Bechets but just like you my scalp is hot burning itchy and scabby at times and as for the pain on and of it's horrendous I'm seeing a consultant Dermatologist next week so hopefully it will shed some light I've been researching this and have found others with the same thing and seen pics very much like mine and they have lupus which I found interesting as Bechets and Lupus have similar symptoms so will let you know what happens x

[billi in reply to B130859]

Hi and yes please let me know it would be good to get a definitive answer. By the way I only wash my hair once a week with a very light shampoo and I just wet it inbetweenand it helps some.

[gillianTS]

Suffer with bruising but this has been put down by the consultant to Ehlers Danlos type 3 I have been just diagnosed with with sometimes runs along with the JHS diagnosed last year, I have hair thinning thankfully no patches. Take a look at the following which might be useful: pcds.org.uk/clinical-guidan... also just sent the link to another person which might be helpful: behcets.org/reference/sympt... hope this might help.

[B130859 in reply to gillianTS]

Thank you I have found this very interesting especially as it states you can develop blood clits as I have suffered 2 heart attacks at 38yrs and 47yrs and a stroke at 52 yrs all caused by blood clots x

[gillianTS in reply to B130859]

You have had quite a lot to deal with over the years I'm not sure if you are like me in that I really think it can be useful reading and seeing what other people experience with this condition, I try not to take everything too seriously otherwise it would get me really down, however awareness for me has helped me over the last 2 1/2 years with conditions I have had all of my life and yet only recently had diagnosed so now I can at least try and put things in place to try and help and if at all lessen the effects which I know is not always possible, it even helps now to be able to say to friends and family the reasons why I feel like I do, not that they understand but it helps me Gillian