Apparently I'm magic (relapsing polychondritis + Behçets=MAGIC syndrome)

[Reikichan]

I'm curious if anyone else also has relapsing Polychondritis. For some reason they can occur together and then u are considered to have MAGIC syndrome (mouth and genital ulcers with inflammed cartilage). Have had RP for 20 years off and on and was just diagnosed with Behçets as well.

jamanetwork.com/journals/ja...

[billi]

Hi and thanks for this information. I actually saw a consultant a couple of days ago and I'm waiting an appointment for an MRI scan. Meanwhile I will research this and see what the docs say.

Billi

[Willdrich in reply to billi]

Think about you!!

[billi in reply to Willdrich]

Thanks for you support. Appreciated.

[Reikichan]

I've got white matter brain lesions too. Which I believe are from MAGIC syndrome. Do u have Neuro symptoms?. I hope your MRI is clear!

[gillianTS]

Hi

I have come across your post after reading about Relapsing Polychondritis and Behcet's around 10 months ago here:

europepmc.org/articles/pmc5...

I had been researching whether Behcet's and Costochondritis were involved with This condition and was intrigued that some of my symptoms fitted in both conditions.

Would you be able to explain to me what you are experiencing with RP that is different from Behcet's please.

[Reikichan in reply to gillianTS]

Sure! Relapsing polychondritis attacks cartilage so you could get chosto or swollen pai.ful ears or nose. Joint pain pain fever fatigue. Some doctors think RP and BD are symptoms of the same disease which they call MAGIC syndrome. Which basically includes symptoms from both. I started with RP abd developed BD much later.

[gillianTS in reply to Reikichan]

Thanks for getting back to me I am grateful for your feedback. Do you have any ankle issues? I have been suffering with this for years with little diagnosis, keep being sent to podiatrist and physio and I am pushing and hoping to get xray and referral to specialist foot and ankle specialist. Suffer from joint pain, have EDS too. Been having sinus issues had a camera looking at sinus yesterday the ENT consultant was unable to see inside the left side and decided to give me nasal spray for a month with a review in 2 months with possibly a CT Scan, I have been suffering with pressure in my face and nose and forehead with no diagnosis, I also see a neurologist at the end of the month. I'm so tired this Is such a complex set of conditions I always seem to be chasing something.

All the best, Gillian

[Reikichan in reply to gillianTS]

No ankle issues except for arthritis like pain occassionally. But I usually dont have joint pain any more. Your 'sinus' issues sound real familiar though. If you are on facebook there is a great RP UK support that I am co admin for...even though I am American. I am friends with the admins and have visited them in the UK. And there is an amazing Bechets group too. I am Dot Busch Droege on FB. Friend me and I can invite you to those groups

[gillianTS in reply to Reikichan]

Thank you, I will have a further big read into the condition too. Do you mind me asking what medications you are taking for both conditions.

Gillian