Inner quakes: Hi all, Not sure where to turn so... - Behçet's UK

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Inner quakes

smitten500 profile image
6 Replies

Hi all,

Not sure where to turn so hope someone can help? Even my GP is scratching his head with this...

I have diagnosed Behcets, Addisons, Dercums and IBS but have developed two worrying symptoms: I have a feeling of inner shaking in my legs which sometimes goes up to my back (feeling like you are standing on shaking ground) I am not visibly shaking, the floor also moves. Sometimes I have one or the other and sometimes both. This has happening everyday and seems to be getting worse. I have ruled out Deficiency in D and Iron. It is not low BP and they happen whether I am sitting, standing or laying in bed. There is no pattern to these. Has anyone come across these problems? I would be ever so grateful if someone can help me.

Thank you

Ali

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smitten500
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6 Replies
billi profile image
billi

Yes I get these mostly when I'm really overtired and not too well. I've sufferred with Behcets for over 30 years and these feelings have only occurred in the last 10/12 years. I haven't mentioned this to my doctors as I honestly thought it was just tiredness. Sorry can't be more helpful but if you are worried at all you should get it checked out.

smitten500 profile image
smitten500 in reply to billi

Thanks I'm not alone it was hard to explain but feel a little better now knowing someone has had this feeling. I am waiting to see a neurologist if he gives it a name I will let you know.

billi profile image
billi in reply to smitten500

Yes please do.

Petluvr10 profile image
Petluvr10

Check into lyme disease and Co infections. Use the igenex test

UKADMIN profile image
UKADMINPartnerBehcet's Syndrome Society

Good luck with your next appointment and let us know how you get on. Warm wishes.

Reikichan profile image
Reikichan

I call it an internal tremor. I get it off an on. Sometimes it gets worse and I do actually sake on the outside. The neuro said it was indicative of pathology but did not saw what.

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