Hello all, I'm Anthony I'm 41, I joined this board a few weeks back as my symptoms all pointed towards BD. I have been really ill since 2014 after a head injury. But suffered chronic fatigue since a viral infection at 19. These episodes of no energy were shrugged off by GP after GP. Sent for heart tests, in 2009 incl treadmill test which I passed, came out the hospital and collapsed into our car and slept for 23 hours straight.
Fast forward to 2014 felt weird episode at work, next I was smashing into a door post lost consciousness for 4.5 hours. Hospitalised for a week, banging migraines and light sensitive, joint pains, dizziness, diagnosed post traumatic migraines. Pains increased, have to use crutches to walk. Outbreaks of mouth ulcers, scalp sores,
Then diagnosed wuth chronic fatigue and fibromyalgia. I read that people have contacted the CoE and they say to ask GP to refer, I finally did this. The GP I saw was about to ask me if I'd ever heard of bechets when I asked her. Luckily she had come across it in her medical training and totally agreed it was very likely as my mouth and head was worse than what she had seen in bechets.
So I'm ill in bed, 24 hours after GP appointed to ive got 10 more sores on head and mouth is becoming bit less sore after mouthwash with soluble steroids. I had a course of steroids last year and after7/10 says I felt pre-19 again, didn't last though.
The most embarrassing thing is 3 times HIV has been questioned, I tend not to be the type to cry discrimination but can't help wondering as I am gay and in a loving committed relationship for 12 years. No need to even suspect that I told them, but I took the test to prove I was right. I know that ulcers are prevalent in late stage HIV but surely these medical professionals should be educated in bechets?
The more I think, I suffered 4/6 outbreaks of multiple ulcers in mouth and sore head since I was young. I have 4/5 major bechets symptoms yet I had to dig about to get myself referred. Thanks to a couple posts I read on this forum.
Thank you to those who mentioned the CoE as I would just be accepting chronic fatigue and fibromyalgia as my diagnosis when I know it's much more.