TNf : Been told to start TFN ,, any body else on... - Behçet's UK

Behçet's UK

5,235 members4,325 posts

TNf

samhawks profile image
4 Replies

Been told to start TFN ,, any body else on it and does it work ,, I see some people have lost their hair , since I have Alopecia I don't want to lose anymore , ,, thought on this drug please ?

Written by
samhawks profile image
samhawks
To view profiles and participate in discussions please or .
4 Replies
Zebra profile image
Zebra

arthritisresearchuk.org/art... I never lost any hair and haven't heard others mention it as a major side effect. Infliximab is an amazing drug and at around £1000 an infusion, we are so lucky to have the NHS.

suzannenmike profile image
suzannenmike

I think you are referring to anti-TNF necrolysing drugs. These new biological drugs work wonderfully well. I have been on Infliximab for three years now, and only have very minor problems with Behcet's. I have certainly not lost any hair either! Where did you get that information from?

fredbear67 profile image
fredbear67

I am

On humira and not notices any hair loss? Notices

More with vast amount of

steroids I was on before

magician profile image
magician

Also on Humira, approximatley 2.5 years now. I do not have too much issues with the sde effects.

But i read recently that the body can produce antibodies to the biologiclals,in Humira.

You may also like...

TNF

my daughter has been asked if you wants to try TNF as the other meds she has tried have not helped...

Diagnosed in February this year

just live with the ulcers. I have been struggling recently and have found the diagnoses incredibly

Ethnicity and Behcet's

Hi everyone, I have researched and researched this disease. What I have found is that it mainly...

Blood test negative, help

negative but have many Behçet symptoms. Does this mean I definitely don’t have or is this common?

Can any one recommend pain relief for headaches, mine can last for days

or I get sick, I have yet to find effective pain relief can any one reccommend any?