Just been given antibiotics for an infection.

[Kedaco]

I have been given Doxycycline but it says online you shouldn't take them if you have any Lupus like systems

I do have Lupus like systems but was told I don't have Lupus. Don't know what they would do to me if I had Lupus

was told I had Behcet's then was told I hadn't got Behcet's the infection is up my nose.

[billi]

Hi and I really do feel for you. Any autoimmune disease is difficult to come to terms with but with most there are definite tests get a diagnosis. With Behcets it is different in all ways, no tests, bloods etc often come back negative, we all have different symptoms and they affect us differently. The average time for diagnosis is 12 years. I sure this is not what you wanted to hear but I'd is a disease of many diseases and most of us have been thought to have at least possible 3 other illnesses, Lupus being one and MS another. I would advise you to keep a diary of dates and symptoms and duration, how you feel daily and also take photos of any rashes, ulcers, lesions etc that way you can show them to the many doctors you come into contact with.

Sorry couldn't be more helpful but please stay with this site as others could perhaps offer you more advice. Good luck and hope you start to feel a little better soon.

Hugs and Smiles

Billi

[Kedaco in reply to billi]

Thank you billy

[nurse_ratchet]

Hi there,

Having BD myself and also test positive for lupus - I can only tell you of my experience with doxycycline. I was on it for 3 months at a time on and off for 2-3 years. At the time it did help clear up the rashes I was having (neck and chest, face) and also did provide some relief to the joint pain. This also happens to be the treatment for Lyme disease, as well as many other infections. I have never heard that before about doxycycline and not giving it to people with lupus symptoms? Did the pharmacist tell you this or your doctor? Both of those medical professionals would be best informed about medications and contraindications, therefore I would be going to them first.

Good luck

[Kedaco in reply to nurse_ratchet]

The pharmacist would not comment he said I would need to ask a specialist and my doctor gave me them so must be ok, it was something I read online when I googled them thank you for the reply.

[Zebra in reply to Kedaco]

I am on it at the moment and my gp warned me it could make the photo sensitivity worse. It is also listed on the patient information leaflet.

[Kedaco]

They worked I can now breath through my nose bit better sleep got to be a plus. (