I have had episodes of waking in the night, choking and unable to speak or breath....my airways close up completely and I think it might be spasm of the larynx....I thought it could be related to reflux and it feels like a dry drowning episode.
Lately, these attacks have become more frequent and have happened during the day while in an upright position. I have had a couple of incidents, where I have stepped into the shower completely dry, got my head or face wet and immediately had closed airways. I make a terrible noise in the throat and am unable to breathe in or out and feel completely smothered and like I am about to die from drowning or lack of air. I have had some incidents of choking whilst eating and drinking, and had trouble swallowing and water or saliva has gone down the wrong way. I cannot actually swallow when lying down and put that down to either being overweight, or possibly a bit of neural symptoms from taking pregabelin. It does not seem to be associated with taking pain meds, as this has happened when I am on nothing. This was the main cause of the anaesthetist refusing a general anaesthetic when I had surgery on my hand, as he did not want me to do that whilst under.
I went to my doc, he had no idea what I was going on about and is referring me to a voice doctor. He also tried to persuade me to stop most of my pain meds, which he always does as a matter of course. Does not make any difference what I am suffering from and he will make a fuss about my pain meds and blame every single symptom on that and hint at me being addicted to painkillers, despite the fact my pain team prescribed what I am on and I am taking HALF the dose they recommended. as my choice....I suffer from a lot of neuropathic pain but choose to just take the edge of it in order to cope. The pain team explained that I would not be dependent on the meds if I manage to take below what is needed to match the pain and also said, if I did become physically addicted it did not matter....if my pain resolved one day, they said I could be weaned off and the withdrawal would be nowhere near as bad as the pain I was getting. I got a sort of phantom limb type pain from median nerve compression as well as pancreatitis, and neuropathy in limbs and other symptoms. My pain was so bad, I was contemplating suicide and my GP was withholding any pain relief telling me it would not help....eventually the pain specialists were seen and I was prescribed what was needed and told that my previous pain attitudes were outdated and barbaric.
I already take anti sickness meds (cyclizine injections when needed) and have severe adverse reactions to others, with fits and spasms so avoid them (e.g. metachlopramide). My doc yesterday prescribed an anitisickness drug for me that can cause parkinsonian symptoms if used long term, and I really do not think it is appropriate to take a drug three times a day and put up with side effects (most of them make me twitch, restless or face spasms) for these airways blockage attacks that last only minutes and are spaced apart (used to be about 2-3 times in 6 mths, but have had 5 or 6 attacks recently over past 6 weeks).
My idea of consulting the doc was to
1: Accurately diagnose the breathing attacks and give it a name
2. Ask what course of first aid is needed, and seek reassurance that my breathing will return to normal and I won't jsut suffocate one day.
My idea was NOT go try and find more meds to stop it happening and make a guess at what it is, and ignore first aid.
I think perhaps he did not believe me when I said I immediately jump out of bed, try and get help making terrible choking noises. He said if I was truly not breathing I would not be able to move....but that is not true. I leap up and try to breathe in or out, cannot, and often run out the room as if its an emergency....a couple of times I have blacked out and come round breathing.
I Youtubed/Googled the symptoms, and came up with laryngospasm and that seems to fit what I have.
General advice by throat consultants online is that these attacks normally subside but are frightening nonetheless.
Why did my GP shrug his shoulders and smile with amusement at this? Like I have just got something odd and unique to me, or like it was nothing? He was being observed by a medical student and I think he was showing off a bit by accusing me of being a long term drug addict because I need pain meds, and having weird unexplained symptoms...he is obsessed with writing out prescriptions whilst I am describing my problem, even if I don't want to take meds and often he hands me prescriptions for stuff I am allergic too, because he jumps ahead of himself and does not discuss the drug before he automatically prints off the prescription....it is frustrating me no end....goodness knows what he said about me when I left the room. I have had him for 20 yrs and he does refer me and is ok in general so I trust him...but found it annoying he was being a bit blase.....and behaving like symptoms I got were totally unique to me as if I am odd because I have BD....He was treating me more like I am a mental health patient and patronises me when he has an audience. He tries to tease me, and start banter and rows and arguments if he is being observed and I do not like it as it is over familiar and not helpful.
Most people on this forum seek assurance that their symptoms are shared by other BD sufferers.
However, I often feel frustrated that docs associate every little thing I suffer from with BD and often that means I get denied the normal course of treatment or surgery, or actually giving up on someone making an effort to find out what the symptoms are rather than just going ''Oh, you are a strange one, this is just your weird body reacting as usual...must be part of the BD!''.
Anyway, has anybody had experience of laryngospasm and know what I should be doing to ensure I keep breathing as it actually happens? Would be nice if the OH knew what to do. It is the worst experience I have ever had, and causes intense pain and sensations of actually dying before resolving even if it only lasts seconds or less than 2 mins. Sometimes I have a lot of vomit blocking throat and it comes out my nose.