Hello: Hi all, I was diagnosed about... - Acoustic Neuroma ...

Acoustic Neuroma Support

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Michyford profile image
6 Replies

Hi all,

I was diagnosed about 6 weeks ago with AN it was a scary shock, I just thought I had lost my hearing in my left ear! I am coping at present and have just seen a consultant who recommended watch and wait, I think it measures 14mm, the tinnitus drives me mad!!! Any tips to help the tinnitus? x

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Michyford profile image
Michyford
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6 Replies
bypass profile image
bypass

First of all don't panic! Secondly, I'm sorry to say that at present there is little to be done about tinnitus apart from learn coping strategies - It does reduce with time though. Thirdly educate yourself so you can make you own AN related decisions (with the aid of experts) in the future and not be pushed into any treatment you may feel is inappropriate for you. The best place for patient centric information is anworld.com/ If you want to read about my AN experience you can read my account here anarchive.org/chris.htm Good luck, Chris

Michyford profile image
Michyford in reply to bypass

Thank you I will check the site and your info out, nice to know I not alone in this

Regards Michelle

Kristyll profile image
Kristyll

There is no cure for tinnitus just coping. Try to relaz or use a masker. You can get used to it. The alternative is be drugged up

Michyford profile image
Michyford in reply to Kristyll

Thank you will look into it more

Regards Michelle

Kristyll profile image
Kristyll in reply to Michyford

good luck, get back if I can help. where are you? I hope you are doing OK x

Michyford profile image
Michyford

I doing ok work keeps me busy, thank you for asking, I live in Suffolk, under Addenbrookes hospital in Cambridge, I have read it one of the biggest skull base clinics in Europe so hoping for their expertise, next scan will be in March so need to try to manage this tinnitus

Thanks Michelle

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