28 years on: I had my surgery to remove... - Acoustic Neuroma ...

Acoustic Neuroma Support

2,690 members899 posts

28 years on

keithzx12r profile image
4 Replies

I had my surgery to remove a large AN on 10th Sept 1987. This was also my wedding anniversary. The surgery left me with paralysis on the left of my face, larynx and throat generally. Over the years a lot of the problems have dissapeared and on my Emerald (55 yrs) anniversary I looked in the mirror and saw I could at last more or less open my mouth wide in a symetrical shape. Whoo Hoo!

Written by
keithzx12r profile image
keithzx12r
To view profiles and participate in discussions please or .
Read more about...
4 Replies
GrandmaAnn profile image
GrandmaAnn

Congratulations!

How lovely to read positive comments.

I'm afraid I'm guilty of using the site for information and other people's experience but rarely comment myself. I had an op 18 months ago to remove a 3cm an. I was very lucky to have no side effects to speak of aside from deafness on one side and a little balance issue when tired (which seems to be most of the time lol!) I am due an MRI in January to check for any regrowth.

I am so happy for you and your wife, Happy Anniversary!

Kristyll profile image
Kristyll

great at long last. there are loads more procedures available as time has gone on. I had mine in 1980. good luck and take good care x

great news!

Thankfully treatments have improved greatly since those days as it has for so many other problems. I wonder how much further treatment will have advanced by another three decades time? Even tinnitus may have been nailed by then!

keithzx12r profile image
keithzx12r in reply to

I've posted before that when the surgeon got inside my head he found three neuromas, only had a CT scan to find the biggest one which was pressing on the blood supply to my brain stem. No gamma knife in the UK in 1987. I went to The John Radcliffe Infirmary for the op. I still have no hearing on the left which is Ok providing you're not looking for an overhead helicopter and take care crossing the road. I had follow up MRI's for six years, now only if I pester the GP - had one last year because of annoying thumping in my good ear which showed nothing so just have to put up with that. Best wishes to all on the site. Keith

You may also like...

Balance issues, eye problems 3 years post-op

will be three years in June since I had my surgery to remove my AN. For two years I had really bad...

My Silver Anniversary

silver (25 years) anniversary of my surgery to remove three neuromas from the left side of my head....

70 years old. Am I too old for surgery?

to have surgery. I am going for another MRI on Friday and then the doctor will schedule surgery. I...

Swooshing noise in left ear after Gamma knife in February this year

at the left side of my head and it affects my balance and now have a swishing noise in my left ear...

Has Anyone ever had an Acoustic Neuroma return.

Had surgery 16 yrs. ago by recently have had pain on that side of my head, especially behind my...