Being assessed for Mepolizumab injection.
It was being fairly well controlled with steroids and inhalers and Azathioprine but since last Xmas i have had 4 emergency admissions and am ...
Hi I am 76 and was diagnosed with pulmonary fibrosis 15 years ago told I would make 3/5 years ! So don't give up my friends....
Biopies revealed that I was ( am ) suffering from leukocytoclastic vasculitis....
No real change with the rheumy!!!
I thought my consultant was one of the wiser ones even though I've only seen her twice in 3 years.... but I now realise she is one of the ' 2...
Azathioprine for PACNS?
Last month I was diagnosed with PACNS, or Primary CNS Vasculitis. I've been taking daily prednisone and the plan was for monthly infusions of...
Help with test results please
Have had results from blue horizon and would welcome any thoughts/suggestions. TSH 0.31 ( 0.27-4.20 ) T4 total 95.2 ( 66-181 ) Free T4 18.00 ...
Old Crohnie newbie here
Hi all, I was fifty earlier this year and have lived with Crohn's for approx 36 years, so consider myself something of a Crohn's veteran now....
Update and medication:
Hello all! Hope you’re enjoying the snow ( in the uk)!...
Coping with a vasculitis relapse
I wanted to write a bit about coping with a vasculitis disease relapse. Fell ill in 1994 aged 22, diagnosed with cerebral vasculitis in 1997....
Hi Lovely People I have seen my Rheumy today -and up to is usual standard he was uncommunicative and uninterested .... no eye contact etc....
The Close Encounter Between Alpha-Synuclein and Mitochondria.
syn ) is unequivocally linked to the development of Parkinson's disease(PD ). Not only it is the major component of amyloid fibrils found in ...
Advice for stiff joints
I have been diagnosed with lupus for 3 years and am currently 35 weeks pregnant, meaning I can’t take naproxen etc which I would previously t...
Tomorrow I am starting an prednisone infusion. I currently have a genital ulcer and am taking dapsone and colchicine and azathioprine....
Bloating and Rituximab
Hi all, I trust you all had as good a xmas as possible given the diseases we endure. I have been like an hermit and not even had one drink bu...
Not sure what to do
My liver specialist wants to take me off my azathioprine/immun supressant for 6 weeks. My liver specialist doesn’t believe that azathioprine ...
Just would like to hear about your experience with azathioprine. i developed more sheathing despite 12.5 mg Prednisone....
Sparkles and negative blood tests
my dermatologiinsist that I have behcets although I have not had any more mouth lesions in the last 6 months and he has me on colchicine spir...
Hi just had blood results from Blue Horizon. Your comments would be welcomed....
Hi All Feeling a bit of a failure at the moment. My Rheumy has added to my diagnosis of GCA/PRM , Seronegative Inflammaroty Arthriis and Fibr...
I waste my time travelling to and from Liverpool center of excellence....
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