Hello everyone! Just joined this site so working my way through things at the minute....
SLE and fibromyalgia?
Hey guys so I recently saw a new Rheumatologist and he said that I had both fibromyalgia and SLE. I'm only 20 by the way....
Benefits of THC and CBD marijuana for GPA Vasculitis
My wife has been using medical marijuana in THC and CBD form for about a year for maintenance with gpa vasculitis and it has controlled her i...
Very anxious about having IV Cyclophosphamide. need to hear of your experience with this drug.
currently my lupus is not under controlled and my lung capacity is diminishing. The docs hope the infusion will kick my lupus into remission,...
Low WBC & Lymphocytes
Hiya I've been taking azathioprine since December last year, I'm on 150mg daily now, last week, had a phone call off gp to say my WBC & Lymph...
What was the point?
Well went for my appointment at the rhumatology nurses clinic today armed with questions about my blood results. Asked my question only to re...
A bit of advice
I have been diagnosed with BD for 3 1/2 years now and the hep and treatment I got at the beginning was second to none....
My mother just diagnosed GPA, help needed
Dear patients and specialists, I am currently working and living in the UK and my mother has been diagnosed as GPA vacuities on November in C...
Low white blood count
Hi I have recently had my blood checked as I am on azathioprine for my gpa don't take steroids anymore but the Dr phoned to tell me to stop t...
I was diagnosed with BD about 2 years ago after having the flu which caused a very severe flare up which left me in hospital for a week on mo...
Doctor says egpa does not affect your brain
She also says that my ANCA tests have always come back negative and that although there is ANCA negative egpa, the ANCA should be positive du...
Constructive discussion with rheumy
I've complained a fair bit here about my rheumy, so it's only fair I should also post when he deserves praise. After the difficulties I had l...
Prednisolone diary 13 - what do I know?
Entry 12 was written a week after going up to 24mg of methyl prednisolone. It left me feeling much improved in mood and energy levels, and op...
Azathioprine and chicken pox
Hi all. I am on azathiaprine and prednisolone....
Azathioprine? Latest offering from rheumy
He says that is OA - mind you he also told me the PMR was done with and I have OA in shoulders, neck and hips OOOOOOOOOOOOOO....
Anyone being treated for Usual Interstitial Pneumonitis/Idiopathic Pulmonary Fibrosis?
Hi all, Please forgive me as I just need to sound off a little to people who might have an idea of what I'm going through, and may have some ...
Restarting an old biologic? UPDATE
Just wondered whether anyone has restarted a biologic or whether it’s a big no, no....
Massage & Lupus meds
Hi folks, Hope you are all as well as can be. I was hoping someone would be able to answer this question for me, as I would really like to go...
I am on hydroxychloroquine for the lupus and he said I will probably be put on azathioprine by liver consultant....
Side effects 🤔
Hello everyone, I hope you are all as well as can be. I apologise in advance for the similar topic post to one I made two months ago, however...
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