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Ataxia UK

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Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for adults and children living with motor function and other...

What is a Molli Suit A comfortable jacket and trousers with built-in electro-s...

wobblybee

•1 day ago

3 Replies

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

Researchers from King’s College London, software developers, and a group of people living with long-term conditions have co-designed a new intervention to help...

Researchers from King’s College London, software developers, and a group of peop...

Irmmy

•4 days ago

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How things are now!

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me awake throughout the night, now great no spasms in the night. She has also...

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me aw...

carol31271

•9 days ago

4 Replies

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🙂For those of us who have fond memories of Bill Treacher.

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series Eastenders. https://www.ataxia.org.uk/in-memory-bill-treacher/?fbclid=

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series...

wobblybee

•10 days ago

1 Reply

Peripheral neuropathy?

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limited to just autoimmune ataxias or do other types like hereditary and acquired...

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limi...

penelope2

•11 days ago

9 Replies

A new study on physical activity in hereditary ataxias is recruiting for participants

If you or someone you know is over 18 and has a confirmed diagnosis of a hereditary form of ataxia, you could take part in a new study on strength and balance...

If you or someone you know is over 18 and has a confirmed diagnosis of a heredit...

Irmmy

•15 days ago

1 Reply

driving a car

Ihave stopped driving my manual car. I have lost confidence as feet don’t always hit the pedals properly. I am wondering those who still drive is anautomatic...

Ihave stopped driving my manual car. I have lost confidence as feet don’t always...

Pussycat1

•17 days ago

9 Replies

neck problems

can anyone tell me why my neck leads to the left recently with a burning sensation & grinding when I turn it. Has this to Ataxia as I’m still unsure of the...

can anyone tell me why my neck leads to the left recently with a burning sensati...

Littlepopeye

•18 days ago

1 Reply

[i]Disability is other people: My Superhero Story[/i]

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former Co-Chair of Ataxia UK and have written a book: Disability Is Other People: My...

I have lived with ataxia for 34 years. I am an Ataxia UK Ambassador and former C...

RCBrownMBE

•18 days ago

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Tremor Assessment

Has anyone had a tremor assessment prior to deep brain stimulation?

Ostap

•18 days ago

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Key hole locator

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance speech swallowing and coordination. I am currently finding it increasingly...

I was diagnosed with cerebellar ataxia about 7 years ago affecting my balance sp...

Velocepede

•18 days ago

3 Replies

hello i am new to this group. i was daignosed in 2022 and have lack of information .

i am 46 and it is 8 years i feel some walking problems

femilia

•23 days ago

3 Replies

Care package for ataxia

I am very confused - what kind of care package do people with ataxia have - I need everyone help - I tell care manager that I have a mobility disability and...

I am very confused - what kind of care package do people with ataxia have - I ne...

Amynah

•24 days ago

14 Replies

Wall Pilates

Hi all, I recently signed up for an app to do a month of wall Pilates to get some exercise and strengthen my core but only did about 18 days. The app I used...

Hi all, I recently signed up for an app to do a month of wall Pilates to get so...

Eveie78

•25 days ago

2 Replies

Leg Strength Change

Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a...

Twice in last 6 months I’ve experienced a big change in leg strength. Once after...

Ostap

•27 days ago

9 Replies

health

I think what was good for you before ataxia is good for you now. The only thing I had to give up was my tight rope walking as i needed two ropes because of my...

I think what was good for you before ataxia is good for you now. The only thing...

paul456

•27 days ago

4 Replies

Information

When first diagnosed in 2004/5 I knew is was incurable but wanted to know more. I never heard about this site, maybe it did not exist yet, and was directed...

When first diagnosed in 2004/5 I knew is was incurable but wanted to know more...

klazien

•28 days ago

1 Reply

Sara score

The last time I went to see my neurologist a couple of weeks ago, it was someone from the team who I hadn't met before. He did the SARA test on me and was very...

The last time I went to see my neurologist a couple of weeks ago, it was someone...

Tallguy101

•28 days ago

6 Replies

Happy

I was talking with my wife about this forum & we found that reply’s & advice given & support gained is quicker, more useful than going to physio, IT even...

I was talking with my wife about this forum & we found that reply’s & advice giv...

Littlepopeye

•29 days ago

3 Replies

Issues

hi there can anyone tell me if they have issues with their neck with ataxia as painful to lift head or just pain around shoulders & the back of the neck, I had...

hi there can anyone tell me if they have issues with their neck with ataxia as p...

Littlepopeye

•30 days ago

10 Replies

speech

Can anyone tell me, I have issues with my talking it’s not a slur but wanting to speak words out but not being able to, I know what I’m trying to say but I...

Can anyone tell me, I have issues with my talking it’s not a slur but wanting to...

Littlepopeye

•1 month ago

6 Replies

SadSad

One time in my life I could walk, run and play sport. I could row for miles in my friends boat. I could climb mountains with my friend Nigel. But not any...

One time in my life I could walk, run and play sport. I could row for miles in ...

paul456

•1 month ago

5 Replies

Experience of Ataxia post

I read a previous post that someone else wrote about how it feels to have Ataxia.....I cannot find it now! Please can anyone point me in right direction I'd...

I read a previous post that someone else wrote about how it feels to have Ataxia...

Frenchoak

•1 month ago

5 Replies

Helped Me

Just thought I would share the wee things that helped me last week. I arranged for someone to cut my grass once a fortnight . The council have put an assisted...

Just thought I would share the wee things that helped me last week. I arranged ...

Sea_

•1 month ago

6 Replies

Millar 69

hi don it really has been bad to you I walk like a drunk man and I have to hold the rail walking up stairs get tired legs just walking short distances but we...

hi don it really has been bad to you I walk like a drunk man and I have to hold ...

Pjpuk

•1 month ago

7 Replies

Art for sale- all for £75 +P&P Ataxia fundraiser

A virtual Art fundraiser for Ataxia UK. Follow the link just to look if you like but please share with anyone else who might be interested, on social media...

A virtual Art fundraiser for Ataxia UK. Follow the link just to look if you li...

pinjem

•1 month ago

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Ataxia Diagnosis.

hello my friends, after having had body tremors and shaking hand since I was a small boy, I had an appointment with a Neurologist at my local hospital on...

hello my friends, after having had body tremors and shaking hand since I was a s...

Veteran250

•1 month ago

18 Replies

Gluten ataxia

I'm going to try and get in touch with Sheffield I went gf in October my ataxia was always slow progression but since going gf it has dramatically worst...

I'm going to try and get in touch with Sheffield I went gf in October my ataxia ...

Tazwaz

•1 month ago

3 Replies

Do you want to take part in research to help advance speech therapies for ataxias?

The University of Strathclyde and US company LSVT Global are recruiting for participants with Friedreich’s ataxia (FA) aged 18 or over to take part in an...

The University of Strathclyde and US company LSVT Global are recruiting for part...

Irmmy

•1 month ago

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🙂 In April……Carers Support Group Meeting

Join us for our next Carers support group meeting on Thursday 18th April from 14:00-15:30. Exchange useful advice on caring for someone with ataxia while...

Join us for our next Carers support group meeting on Thursday 18th April from 14...

wobblybee

•1 month ago

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

Mollii Suit…..giving muscle stimulation

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

How things are now!

🙂For those of us who have fond memories of Bill Treacher.

Peripheral neuropathy?

A new study on physical activity in hereditary ataxias is recruiting for participants

driving a car

neck problems

[i]Disability is other people: My Superhero Story[/i]

Tremor Assessment

Key hole locator

hello i am new to this group. i was daignosed in 2022 and have lack of information .

Care package for ataxia

Wall Pilates

Leg Strength Change

health

Information

Sara score

Happy

Issues

speech

SadSad

Experience of Ataxia post

Helped Me

Millar 69

Art for sale- all for £75 +P&P Ataxia fundraiser

Ataxia Diagnosis.

Gluten ataxia

Do you want to take part in research to help advance speech therapies for ataxias?

🙂 In April……Carers Support Group Meeting

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive