Link to Rare Disease UK Survey

[HarryB]

Dear all

Rare Disease UK have sent the following link:

survey5.orcinternational.co...

I hope you have more luck this time! If you have any problems please so not hesitate to let me know.

Best Wishes

Harriet

[Champ]

If the above doesn't work for you then please try this:

To access the survey please go to raredisease.org.uk/news... & then click on his page where it says "You can complete the survey here".

[tedjohnson]

Hi Harriet

I have received the survey today but had to do 2 as I have also got Hairy Cell Leukeamia

but as it is snowing outside it kept me 'out of trouble' !!!

Hope you are keeping well and warm

Cheers Ted

[neta]

Dear Harriet,

This is apparently only for UK residents, which I am not. (But I said I was after trying to get it to work.) Neta