My ataxia

[Jobbo16]

My name is sue Jobbins I suffer from inheritance C Ataxia SCA1 I have walker I felt lonely especially when friends don't understand. I have other illness it gets me down but I love my music which helps a lot .especially Adigo in G Minor .I grow my own veg and fruit

[klazien]

It is good that you have your music but how can you still grow your fruit and vegetables? I cannot go outside anymore, too dangerous.

[wobblybee]

Hi Sue, welcome🙂

🙂 I’m enjoying Christmas music at the moment…anything remotely Christmas related 😉

🙂 I did enjoy pottering in the garden, it was so relaxing and peaceful..It’s amazing how many hours can pass without notice when doing something you enjoy..We moved house a while ago, and we’re still getting grips with creating a new garden….it was completely overgrown, and now it’s cleared there are so many decisions to make. My husband intends to put some raised beds in to add interest….plus it means no bending 👍

[Piero]

We cannot help but be isolated to some degree by this condition. I live in a fairly sizeable city, but I'm now unable to easily utilise its advantages. I also feel guilty at expecting others to beat a path to my door so consequently my social isolation increases somewhat. Keep going with the veg for as long as you can. I gave up about two years ago when I found myself unable to dig without toppling over.

[homemaker2000]

I have inherited Ataxia too SCA. I will correspond if you like. I am in Canada