ATAXIA AND GRIEF

[kathie29]

MY HUSBAND ,who was my caregiver, passed in June.Do you think ataxia prolongs grief?

[Cuds]

Hi Kathie, I'm sorry to hear of your loss. It is difficult to say if ataxia prolongs grief...but your loss is actually very new still. If your husband was your main caregiver then your grief may also be complicated with feelings of fear and anxiety about your own future and how you will manage that. I would make sure you get some professional help to assist you through this process amd ensure you have a support network in place. All the very nest of luck to you...and take care.

[kathie29 in reply to Cuds]

thank you!

[neta]

Sorry 4 your loss. My husband died 1..7 years ago. He wasn't terribly involved with my ataxia. But his sudden , unexpected death was a shock and my neurologist noted its negative effect on me, So the loss can effect your condition Better times...xoxo N

[kathie29 in reply to neta]

thank yu

[TELEEN]

Yes,i lost my husband 4yrs ago and in those 4 yrs i have got worse,there is no doubt about it. I am still grieving,i lost my soulmate and feel i will never ever 100% get over it....you are in the early stages and have a way to go....take care and remember yourself as well!!

[kathie29 in reply to TELEEN]

thank you, when can I expect to feel a new normal?

[TELEEN in reply to kathie29]

Hi Kathie...it's a very slow process,you new normal comes to be you in small stages as you travel through the grieving process, things will and do get better gradually,you must allow it to happen at your pace..it's a long road i'm afraid,i'm still on that road after 4 yrs, but further down than you,but much better than i was,it trully is a journey. Take care Kathie......if you ever want to talk here..you know how ....

[kathie29 in reply to TELEEN]

Thanks a bunch..I will be patient.

[Litty]

SO SO SORRY - just reading this made me cry. Very early days and lots of grieving -yes I think with ataxia we have extremes xx

[kathie29]

thank you!

[claire01]

I echo Litty...sending hugs xx 😥

[kathie29 in reply to claire01]

Thank You!

[february]

My deepest sympathies for the loss of your husband! I lost my first husband when our children were 12 and 14 years old. A year after his death, I started having extremely minor symptoms of what I would find out later were due to ataxia. I remarried 10 years after his death (to a wonderful man) and, by then, I had been diagnosed with my ataxia. The stages of grief are different for everyone. Eventually the pain will lesson, although you'll always miss your husband (it's been over 20 years for me and I still think about him every day), as we always miss the people we loved. I went to a grief support group for several weeks after my husband died, which really helped me! Seeing how he was your caregiver, you have much more to deal with I would suspect! My best to you..., ;o)

[sam99a]

i'm sorry for you loss. I've noticed my symptoms worsen with any kind of stress/extreme emotion and grief is one of the biggest, so i'll just echo the others. make sure you look after yourself and don't try to rush yourself as you grieve. the pain is real and deep. i'm so sorry. stay strong.

[kathie29]

thank you!