Astaxanthin and glutathione

[Happyfacexx]

Hi I sometimes see a private doctor (when I can afford it) to have vitb12 injections ( my gp won’t give me them ) and she suggested I have glutathione injections, she gives them to someone with motor neurone disease, has anyone else had them or taken glutathione supplements? Did they help? Also I’ve been reading about astaxanthin and am going to take supplements, anyone else taking these and do they help?

[HarryB Administrator]

Dear Happyfacexx

Thank you for your post. I am afraid I have no knowledge of the use of these two supplements in patients with ataxia. There is is certainly no robust clinical evidence to suggest either is helpful in patients with ataxia. I am sorry not to be more positive.

However if you decide to take them please speak to your doctor first to ensure they are safe for you and will not interact with any prescribed medications you might be taking.

Best wishes

Harriet

[sunvox in reply to HarryB]

She says in her post that a private doctor recommended this so I'm not sure what purpose your statement of "speak to your doctor first" serves. There is extensive research in other neurological disorders corroborating the usefulness of glutathione in enhancing cellular survivability.

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Happy,

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To your specific question, I do not believe you will find other people on this forum that have tried glutathione or astaxanthin, but if you have found a doctor brave enough to try something new for a condition for which there is NO other alternative than I urge you to get a second opinion, and then if you decide to try it, I hope you will share your experience.

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Joe in NY

[Happyfacexx in reply to sunvox]

Thanks joe

It’s a shame my private doctor is so expensive as she seems a lot more willing to give things ago I’ve had vit d, injection ( just one as levels where low, ) also a wellness IV infusion and several vit b12 and now 2 glutathione injections.

My GP had never heard of ataxia and when I asked about vit b 12 because I’m a vegan she said why would that make a difference! So I wouldn’t bother checking anything with her ( but she’s a nice person and means well , which I find very important, I couldn’t handle some of the awful GPs I’ve had in the past)

I will carry on taking astaxanthin and glutathione supplements and let you know how I go.

Incidentally I’m doing a 6 week MS course and there’s a lady who’s had ms for decades and could hardly walk, then she developed Parkinson’s and was put on meditation for that, and basically she cured! She doesn’t even use a stick now! She walked over a mile the day before the class,

[Hidden in reply to Happyfacexx]

Interested to hear what was a Parkinson's medication? O read a similar article a few years ago where an Italian lady took a small tablet once a day which improved her ataxia. But I was never able to find out what it was

[Happyfacexx in reply to Hidden]

She never said the name of the medication, I’m guessing it’s what ever the standard Parkinson medication is? She takes it 3 or 4 times a day, she’s also very religious and believes that prayer has helped .she’s probably the oldest person in the group of about 20 and after decades of disability she is the healthiest in the group

[Hidden in reply to Happyfacexx]

Thank you

[ConfusedAtaxian]

I started with Ataxia just after starting B12 injections. A year later, I had a blood test and was told my B12 levels were so high they couldn’t record them and to have no more and check annually. So B12? Kinda leaves a sour taste in my mouth..... not heard of the other supplement.

[Marz in reply to ConfusedAtaxian]

Once supplementing or injecting B12 the results are skewed. Serum test contains both bound and unbound B12. Only around 20% of the B12 result can reach the cells where it is needed. Do you know what your B12 result was before injections ? - am thinking it must have been low for the GP to prescribe - or perhaps you are not in the UK.

I have read on the Perncious Anaemia Society forum here on HU that symptoms often get worse before they get better. Maybe the waking up of nerves that have been deprived of B12 for a long time. Also important to know your Folate level as B9 works with B12 in the body in an important way. In the link below you can read about the testing whilst supplementing - they are the Guidelines your GP should have read from the British Haematological Society ... I inject B12 weekly and take a good B complex to keep all the B's in balance - and me

onlinelibrary.wiley.com/doi...

[ConfusedAtaxian in reply to Marz]

Thank you Marz 🤗