New here!!: Has anyone done a gluten free eating... - Ataxia UK

Ataxia UK

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impulse4 profile image
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Has anyone done a gluten free eating plan, and what are the results? I am asking because I read that is has a significant role in helping to slow the regression, and I am going to start myself.

Thanks

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impulse4 profile image
impulse4
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9 Replies
Marz profile image
Marz

ncbi.nlm.nih.gov/pubmed/201...

You may be interested in the above piece - which appeared on the Thyroid UK forum here on HU today. I have been gluten free for many years in order to heal my gut to reduce Thyroid anti-bodies. Dr Datis Kharrazian wrote the book - Why Isn't My Brain Working - which may also be of interest. He discusses gluten molecules penetrating the blood brain barrier and causing inflammation. He has a website too.

I have read about Gluten Ataxia - B12 Ataxia and Hashimotos Ataxia so I am treating all three :-) I think B12 injections have been the best !

ninotchka profile image
ninotchka

Hi,

I just started a gluten-free plan, along with limited dairy and eggs, as these foods are considered inflammatory. Anthony William, the "Medical Medium" is a firm believer in eliminating inflammatory foods, along with soy and corn, due to their high probability of being genetically modified. I live in California, USA, and you know how we Californians like to pursue these ideas!

CarerNeil profile image
CarerNeil

It's interesting to me that in the replies I've read so far, the main dietary motivation seems to be 'anti-inflammatory'. I say this because we've recently spoken with our Consultant re. the anti-inflammatory benefits of CBD oil, and his response was 'go ahead if you want to, BUT inflammation does not appear to play a part in CA - it's a neurological condition, therefore, you cannot expect it to change anything'.

I'm not suggesting that you go one way or the other, but I will suggest that you discuss it with your medical advisor.

Now having said that, I'm about to contradict myself. :) MS is similar to CA in many ways, and I had occasion to meet a lady who had completely recovered from MS through dietary means. This was her bible ... amazon.co.uk/Overcoming-Mul...

I wish you the very best of luck & implore you to update us all on how it goes.

Happyfacexx profile image
Happyfacexx in reply to CarerNeil

Thank you carerneil I go to a ms group and my ataxia symptoms are exactly the same as ms. So am very pleased to get the details from you about overcoming ms . I look forward to getting the book 😀

CarerNeil profile image
CarerNeil in reply to Happyfacexx

I wish you all of the very best with it. There's an accompanying recipe book she recommended, but I can't remember which one it was. There appear to be a few on Amazon.

Happyfacexx profile image
Happyfacexx in reply to CarerNeil

Yes , thanks, I’ve just had a look on the oms website and they have a few recipes on it and advertise a book there 😊

Happyfacexx profile image
Happyfacexx

Hi, I think there’s a few of us in this group following Anthony Williams diet which is a vegan gluten free diet ( with lots of other dos and don’t s). I definitely feel better following it. Don’t think I’ll ever go back to eating gluten

ninotchka profile image
ninotchka in reply to Happyfacexx

No, it is not vegan. Anthony William does not speak ill of meat, fowl, or fish. Of course, beef should be grass-fed. He doesn't approve of pork because he believes it to be too fatty.

Litty profile image
Litty

Welcome

We are all so different - you need to try it yourself to see if it helps you. Because my daughter is celiac we have very little gluten, but I have not found gluten affects my ataxia x

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