New Diagnosis

[Glanawmor]

Hi everyone

I’m new here and have recently been told I have SPG7

Yesterday I saw a geneticist who has referred me to her Consultant,Physiotherapist,Occupational Therapist and Speech Therapist

I am on no medication and my only problems at the moment are with steps-I need to hold on to something ( my husband is ideal!) and I have some difficulty saying some words.

My Neurologist says he can’t say wether I’ll get future problems so I’d like to know from you what to expect in the future (I know no one has a crystal ball but thought I would ask anyway)

[wobblybee]

🙂 You may come in contact with more people diagnosed with your particular type on Facebook. Search ‘hereditary spastic paraplegia’ and several links appear, including spg7 🙂 xB

[alerted]

Hi glanawmor

I have same spg7..... 2 of my three brothers also...all different my symptoms are loke yours but my youngest brother needs walker and has difficulty with his hands...where older brother is somewhere inbetween.the other brother shows no symptoms at all so everyone different ...I try to descibe my own symptoms at present like being under the influence of beer lol nobody can tell me how it will progress I'm only guess I'll become like younger brother so I can't say you will become more clumsy can only hope like myself it's very slow at present...good luck