Ataxia

[abster34]

HI I am new to this, wondering if there is a special diet or vitamins that help Cerebral Ataxia?

[wildstyler]

I have cerebellar ataxia and I am on a diet of cream cakes, pies, chocolate, and biscuits, it won't help the ataxia, but you'll enjoy it !!

[Hidden]

I try to keep as fit as possible and go yo the gym once a week and also do pilates and I've lost weight. Istill enjoy a glass of wine and a cream cake. My balance is a little better since I've been exercising so I enjoy life a bit more . Try to keep happy and healthy.

[Wedny1]

I take vit d and c mainly through winter but still try and exercise once a week! Remember to keep smiling and the odd cake does go down well x

[Litty]

Welcome

OK we are all very different and unfortunately you need got find out what works for you!

Exercise helps many, also walk as far as you can as often as you can. Eat as healthily as you can (lol - but try to enjoy life!).

I THINK - Tangil (the French acetylleucine), mannitol and B1 (thiamine) help me. The later 2 give me a dodgy tummy!

Sunvox has many tips too.

Good luck x

[wobblybee]

🙂 We all know that keeping to a STRICT GLUTEN FREE diet is proved to be of great benefit to those diagnosed with GLUTEN ATAXIA. What I didn’t know was another type of diet is advised for another type of ataxia, Glut 1Deficiency and a Ketogenic Diet.

g1dfoundation.org/what-is-g... 🙂xB

[Happyfacexx]

I now eat a vegan gluten free high raw diet and have now started vitb12 injection s which I have to pay for, the symptoms of vitb12 deficiency are very similar to ataxia so I’m giving it a go, I’ve only had one so far but will post at a later date with how it’s going. Welcome to our group

[foffee11]

I do a paleo diet exercise everyday laugh drink wine keep going

[Cubsfan]

Folic acid, B1, B12, vitamin E, multi vitamin & exercise as much as tolerable. I try to keep weight off but enjoy eating too much

[chrismor]

My neurologist recommends Vitamin B Complex. I supplement with Omega 3 of my own volition. I don't have the counterfactual because I keep up the dosage and therefore don't know what would happen if I stopped. With those and vigorous exercise my degenerated cerebellum (equivalent to a person in his/her 80s yet I'm 73) seems to be in static mode one year after an unexplained semi-collapse. I do the park run (a bit wobbly) and two vigorous walks. No problem on the mountain bike as long as I avoid bumpy terrain. I'm interested to learn whether very strenuous running (I am too competitive after a lifetime of sport) is potentially damaging as opposed to more structured lighter exercise which is not really my preference.

[ninotchka]

To Wildstyler: NOT cerebral...cerebellar.