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Ataxia UK
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Length of toilet visit.

Hi I'm going to the toilet I take 10 20 min to empty my bladder.

Also at times if I fall asleep my bladder spasames and I'm desperate to go it takes

30 mins or more to get comfy

Louise

11 Replies
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Sorry that you are having this difficulty I know that I have to do self caths at least times a day to keep my bladder all the way empty you may want to try it twice a day especially before going to bed.

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πŸ˜‘I sympathise with bladder spasms, the one's I have are excruitiating. Sometimes it takes quite a while for the pain to go away but I don't associate this with needing to pass urine. In the past I've had bladder investigations but nothing untoward was found.

For peace of mind, ask your GP for a referral to a specialist πŸ™‚xB

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Hi , I must save up for night-time when I go up to 4 times usually or 6 times in the extreme. I find that I have to squeeze my bladder. I wake up tired. My neurologist just said 'how annoying for you', maybe a GP visit would refer me to someone.

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😳 Did you tell your Neurologist about 'having to squeeze your bladder'? Make an appointment with your GP and ask for a referral to a specialist, don't just put up with it when there may be a solution, or at least, help πŸ™‚xB

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Thanks for your concern wobblybee, no I did'nt tell neurologist about squeezing, I won't see him until October. I'll see GP for a referral. 😁X

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Hi.

It's so annoying for you. I'm currently seeing an incontinence nurse. Ask your neurologist if anything can be done ie tests. I do know that tablets can be given as a last resort but maybe they can suggest other things that may help?

All the best πŸ€—

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I be joining you soon or tenna lady's at 40!They cost a heck of a lot and I wish not to go there..

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thank you

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I am currently taking pills to help me empty my bladder fully whilst l understand that taking pills to help is a last resort. If l don't take them l retain liquid and l "blow up"resulting in a hospital visit. This is caused by liver damage. Just a thought

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Oh no I have same problem although mine is opposite I was peeing everywhere running not an option I still forget to clean myself properly (I even dropped !!!!On the floor but blamed my Dad!!He took the blame and got yelled at I was yellow first toxicity throwing up yellow bile all over my old flat I was terrified my son even more so!!Everytime I took a tablet firstly it started in the morning I was projectile vomiting(I stopped Coffee my son kept saying run Mummy run!!I did my best but this was worse than horrific for a 6 year old then it started at night I was told anxiety 2 x I went back before arranging my own routine blood test luckily a nurse routinely said oh I am just going to check you halliperidol and carbamazepine levels I was cold turkey overnight in the community it went on for weeks me getting worse and worse having seizures and also becoming more and more distressed 8x I went back ...Begging for help.The rest I will not go into it's awful landed in a flipping life changing accident that landed me criticaly ill and a friend dead..Heartache that can't be repaired for his family and mine(A six year old expected me home 3 months later I was for a while then 9 more months in hospital (I have no sadness for myself my family and our friends yes.)I changed GP who couldn't believe it.Its in the hands of lawyers not for money but a bit of honesty would help no info was passed to anyone the next hospital not knowing I had a toxic reaction put me on more he had no pharmacist!!Was dishing out pills like smarties and has damaged two family's beyond repair not informing the second hospital that I had the first reaction was the worst thing I broke my ankle the day after I came out my brain had actually fried it leads to a temperature so high a coma and multiple seizures (I was throwing up blood unable to swallow and came round unable to walk without it being into walls )Being mute I was unaware I missed my Mums 70th Fathers Day and nearly my Dads birthday.. Hopefully not again!!🀞🀞🀞Getting hair done at home helps make you feel better (Even contact lenses in wrong eyes take them out and start with a new one pair!!Can anyone else recall not still knowing right from left!!Any sugestions other than writing it on shoes and getting them on the wrong feet!!🀣🀣

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I leave it too late I did today my Mum said I was totally incontanant at one point..πŸ™ˆI rather not know...

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