Hi All, I hope everyone is well.
I was just wondering if anyone who suffers with or knows someone who suffers with Hereditary Cerebral Ataxia knows if random sudden onset of "bad symptoms" is normal?
To try make myself clearer ill breifly explain. My mother suffers with Hereditary Ataxia. Literally within the last TWO days she has lost the ability to dress herself, feed herself and has seemed to have lost what was left of her balance and her shaking is unbelievably worse. I just found her damn near having a panic attack at the bottom of our stairs gripping onto the hand rail partially screaming as if she was hanging off the edge of a cliff for dear life. Bearing in mind she was sat at the bottom of our stairs, not standing but still somehow fearing she was going to lose balance and fall. I calmed her down and explained she couldnt fall further from the ground as she was already sitting down on it to which she just looked so confused. I made sure she made it to the sofa comfortably and now shes calmer but just by the look in her eyes i can tell shes panicked. I am well aware of the progression of this awful condition but can all of that happen within a matter of two days so rapidly? I was just getting used to everything getting slowly progressivly worse and now it seemed to have sped up ten fold.
On this page Im bound to ask SO many questions as this is honestly the first time in years ive not felt so alone. (So grateful for the internet☺️)
Anyway I have an appointment booked with her doctor for Monday, however im concerned these symptoms and how fast they came on, are not normal and i should call for emergency help so she can be taken into hospital for further assesment. I dont want to seem dramatic but its frightening for us but more importantly its so scary for her. Bless my mums little heart ❤️