Informing DVLA: Hi, I want to find out how anyone... - Ataxia UK

Ataxia UK

4,032 members4,570 posts

Informing DVLA

Tiggywinkles profile image
14 Replies

Hi,

I want to find out how anyone else has got on with keeping their driving licence after informing the DVLA of ataxia (I have FA) I have not told them before as I didn't know I needed to, but have now read I should. Did you have to have a driving assessment or just got a restricted licence?

Written by
Tiggywinkles profile image
Tiggywinkles
To view profiles and participate in discussions please or .
14 Replies
tedjohnson profile image
tedjohnson

Hi. Tiggywinkles

Glad to hear you have notified DVLA as it is the law. In my case my consultant confirmed I was ok to drive and I had a short term license Then my sight deteriorated and my consultant said she advised me to give up driving and would not be telling DVLA I was safe to drive so I handed in my license. I believe there is a special test you are asked to take which I gather is quite stressful but I gave in before then

Good luck but don't take unnecessary risks if you are in any doubt. Tedq

wendygirl profile image
wendygirl

Hello, when I informed DVLA I didn't have an assessment but was given a 3 year medical licence. When I had to renew it last year it did take awhile waiting for my consultants to reply but was still allowed to drive. Wendygirl x

Jenny789 profile image
Jenny789

I told the DVLA about my condition (CA). It took them a while to respond but my licence remained the same and I had no assessment but I feel that you should notify them because if you are involved in any type of accident your insurance would become void. However, this was years ago so I am not certain how they treat it now. I now don't drive (my own choice) but I feel that my independence has been taken away. Good luck in whatever you decide.

kjtibby profile image
kjtibby

Hi glad you let them know. I had my licence revoked BUT I knew I wasn't safe and hadn't driven for a few weeks even before I saw my neuro. I believe it boils down to medication and if you can control your car

D1DG3 profile image
D1DG3

Hi, I told DVLA via forms on their website under neurological conditions which I printed then posted. DVLA contacted Neurologist, doctor, the outcome was that I had a driving assessment done in 2007 now drive with hand controls the best decision I made instead of just giving my driving liscence up, no limit on it either what I can see. Good luck with this.

D1DG3 profile image
D1DG3 in reply to D1DG3

PS, runs out 2030 which makes me 70yrs old what then? Not really thought about it!

Nigel-2112 profile image
Nigel-2112

Hello, I too have FA, but if you didn't notified DVLA your insurance may not be valid! In my case my consultant confirmed I was ok to drive and I had a letter from the DVLA saying that they have been notified but no change to my license.

nigelrheath profile image
nigelrheath

I have sca6 and used the forms on the dvla web site. They asked me to see my GP, who undertook a standard driving test. Actually it was a different doctor in my surgery and when I entered the room he said "I've got to do a driving assessment is that right?" "Yes, I've got ataxia" I replied. "Oh, you're a taxi driver!" He said !!

Test was no problem and dvla have not put any restrictions on my licence. When I told the doctor all I was doing to combat the symptoms and increase my strength he shook my hand, three times!

Want to know what I'm doing? Go to Ataxiafightback.wordpress.com to find out.

Nigel

Tiggywinkles profile image
Tiggywinkles

Thank you all for your replies. I will have to take the bull by the horns and fill in the DVLA form to tell them. I shall hope that I am deemed OK to keep my licence as I would be stuck without it due to where I live.

Ginger1 profile image
Ginger1

I have cerebellar ataxia & cervical dystonia. informed dvla as it's law many years ago. Filled in forms from dvla when due for renewal . They contacted my neurologists & GP.. I have nystagmus in eyes so had to go for eye test at test centre. No problem. 3 yearly restricted licence given again. I don't drive much at all but it's there. Choice. Good luck 🤗

jneilw51 profile image
jneilw51

I live in Indiana in the US, so things may be a bit different here, but the Department of Motor Vehicles told me that, since the symptoms of Ataxia can vary greatly from one person to another, what they would want would be a very specific statement, from my Neurologist, indicating the physical impairments, related to my ability to operate a motor vehicle, which my Ataxia was presently causing me to experience. They also said that they would want that doctor to give an opinion as to whether they thought that I should have any limitations placed upon my ability to operate a motor vehicle.

Ant1 profile image
Ant1

Helloee,

You know whether or not you're safe to drive. I decided I wasn't, and stopped it - driving and then the licence. Inconvenient but how will you live with yourself for the sake of convenience and pride, if something happens?

My biggest problem can be identification - I've never wanted or needed a passport!

Regards Ant

Tiggywinkles profile image
Tiggywinkles

Well, I have heard back from the DVLA and ... I have been given a 3 year licence!! Such a relief as I live in a remote location and can't go anywhere without a vehicle. I shall continue to drive whist I feel I am able to. Thanks for all your replies.

alerted profile image
alerted

both my older brother have cerebellar ataxia none had adcessment but both got 3 year licenses...do you also know your.car insurance company needs informing....depending on which co your with your payments may rise...mine went up but brothers didn't

You may also like...

DVLA and Licence

Got a letter from DVLA stating they have withdrawn my driving licence and I can apply for a 'medical

DVLA Driving Assessment

My friend who has cerebellar ataxia, has to go for a driving assessment test sometime soon. Could...

Anyone need Information and Support!

think I will, I want to have a go a quad biking as I can no longer drive a car and I have never...

Information appreciated 😀

help in getting a drive. Any information really apprciated as not sure how to go about it

Misleading Information

and in hindsight I probably would not have purchased it knowing what I do. So be warned, don't buy...