Shortness of breath

[anihol]

Hi I have recently started with sudden onset of shortness of breath I have been to my GPS who has ruled out anything else has anyone else experienced sob with their ataxia?

[HarryB Administrator]

Hi anihol

I have never heard of SOB associated with ataxia. I am glad you have been to see your GP about this and that serious causes have been ruled out. I hope it settles soon.

Harriet

[anihol in reply to HarryB]

Thanks for responding so quickly as I am seeing the consultant next week maybe he will have some idea of what the cause is. Anita

[Iain_100]

Hi anihol,

Yes. But it is definitely not a direct symptom of ataxia, but, in my case anyway, a consequence of now being less physically active than before. I suffered from childhood asthma, so have had to be quite active throughout my life to give my lungs a good, daily, workout (usually non-impact activities such as cycling/swimming). So now that I'm no longer as active, my lungs are not getting the exercise that they need. The answer for me, as directed by my GP, is to walk as far, and as fast, as is possible, every day (this also has the benefit of leaving me fitter in general, and in a better position to face the physical consequences of ataxia).

And, rather importantly I feel, exercise makes you mentally stronger too. Which definitely helped me accept/adapt to a physically-limited future.

Iain

[anihol in reply to Iain_100]

Thanks iain I had childhood asthma too

[WalterWillingale]

Hi, I have started having shortness of breath over the last two weeks as well.

[anihol in reply to WalterWillingale]

Get your gp to check your heart lungs etc

[Hidden]

My husband also suffers bouts of shortness of breath which seem to be increasing in frequency

[anihol in reply to Hidden]

Have you reported this as it could be tablet related?

[Hidden]

The GP seems to think it's part of the ataxia but we will be speaking to the consultant when we see him

[anihol in reply to Hidden]

Me too I see prof hadjivassilliou next week

[neta]

Lately, I have very brief almost involuntary breath inclusions, it's as if I am getting a whiff of wind from somewhere. Is this shortness of breath? I am sure its CA related. Never had it before. Probably something horrible afoot like shrinkage of the diaphragm muscles? Not sure.L,N

[anihol]

Not sure but you need to get it checked out. I get short of breath on exertion or when talking alot

[Roshidah in reply to anihol]

same with me. I have gone to the hospital & had my lungs checked and doctor said nothing to be worried about but he made a point that I need to rush to the hospital if this become worse. I've never had this symptoms before & it gets really uncomfortable & tiring.

[Rankin63]

I suffer from SOB often in the evening and when I have eaten a full meal or exerted myself (like climbing the stairs).A lie down for 15 min. or so helps as does eating little and often. My specialist says it could be caused by diversion of energy to digestion of food. Hope this helps.

[anihol]

Now going to see ent as we think I get short of breath due to my throat not my lungs. Will keep you posted