Hello all, My name is Margaret and I am reaching out to people who have non genetic Cerebellar Ataxia. I would like to know does anyone have the same problems as I do? I am unable to use a walking stick or crutch to help with my balance. I also have face paralysis. About 12 years ago I started to have a problem in my throat that both I and my doctors are still confused on. It feels like I am constantly swallowing and trying to catch my breath. This can last for a minute or so and my voice becomes croaky and distorted while it happens. Sometimes this can feel like trapped wind trying to get out but cant get out, it can be uncomfortable.
I am just wondering does anyone here have the same experiences with their Ataxia. I look forward to hearing from you all. Thanks