Hi everyone.: Hi everyone. I've just joined the... - Ataxia UK

Ataxia UK

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Hi everyone.

bevvick1964 profile image
16 Replies

Hi everyone. I've just joined the forum, looking to make new connections and friends, seek support, learn new things and hopefully share my experiences, support, help and friendship.

I went to the Ataxia U.K conference on Saturday and whilst having a great day l also met some truly amazing people. Having never met anyone with Ataxia ever, it was good to feel accepted and not different or odd and also to learn new things about my condition.

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bevvick1964 profile image
bevvick1964
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16 Replies
wobblybee profile image
wobblybee

Hi Bev, welcome 😊xBeryl

bevvick1964 profile image
bevvick1964 in reply to wobblybee

Hi Beryl nice to see you on here B xxx

wibblywobbly profile image
wibblywobbly

Welcome to this group. I've found it really helpful - I hope you will too.😊

bevvick1964 profile image
bevvick1964 in reply to wibblywobbly

Thank you. I am on Bens friends too and they've been really supportive.

Iain_100 profile image
Iain_100

Hi Bev,

Welcome!

Yes, it can be something of a relief to talk to someone in the same boat. Some friendly and knowledgeable people here.

Iain :)

bevvick1964 profile image
bevvick1964 in reply to Iain_100

Thank you for such a nice welcome x

poolboy profile image
poolboy

Hi Bev and welcome. I only joined a month or 2 ago and it does make a difference.

Nigel-2112 profile image
Nigel-2112

Hi Bev, glad you liked the conference!

Nice to see you here, Bev!

Lol!

See, i do check! Lol!

Glad you enjoyed the Conference. Sounds like you did it in style!

Vion profile image
Vion

Hi Bev, I only joined recently too. Glad to be apart of something which is scary at times.

february profile image
february

Dear Bev, A HUGE welcome to this site! You'll find wonderful people on here for support and understanding! I live in the US (State of Michigan) and, like you, had never met anyone else with ataxia until I attended a conference through the National Ataxia Foundation (NAF) here in the US a couple years ago. In fact, I had never heard of ataxia when I was diagnosed eleven years ago. I'm also on the Living With Ataxia (through Bens Friends) site here, you may want to check it out. You are not alone in your journey...,;o)

Pec2884 profile image
Pec2884

Hi Bev. Tell us about the content of the conference. As you say what a relief to be able to meet, discuss and hear some interesting presentations.

I am newly diagnosed and live in South Africa so no chance of a conference here.

A question. Does a persistent cough and chocking at times go with the condition?

hymek7000 profile image
hymek7000

It would help more if you let people know where you are. I am in Dorset. I could not go this year. There are various support groups available through the Ataxia UK website.

Hope his will help. good luck to you.

bevvick1964 profile image
bevvick1964

Sorry, I live in Kent..

kareen profile image
kareen

Your not to far away from me..I'm in Enfield ..do you go to any ataxia meetings I think my nearest is nothing London..I think that's what they are called..I have not been to one yet..I know the next one I'd on Saturday coming..I might go and see if I get any answers and it will be nice to talk to people..I haven't spoke or don't know anyone with the condition x

bevvick1964 profile image
bevvick1964 in reply to kareen

I think the nearest one to me is in Dover. I'd never met anyone till I went to the Ataxia conference either. There used to be one in Rochester but it's not there any more. Might be nice to meet others. X

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