shy: I am very shy,i'm struggling with my walking... - Ataxia UK

Ataxia UK

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shy

AlphaWolves profile image
8 Replies

I am very shy,i'm struggling with my walking at the moment,but mum keeps me on my feet,thanks claudia

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AlphaWolves profile image
AlphaWolves
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8 Replies
degarmo profile image
degarmo

Hi I was diagnosed 3 years ago. I Was shy to start with but now I have a wheelchair I am even more conscious and afraid to go out on public transport.

AlphaWolves profile image
AlphaWolves in reply to degarmo

hi i got re-diagnosed with a rare type of ataxia this year.i know its tough as people stare but you shouldn't feel shy you should be proud of who you are .you are not alone there are other people in the same situation .You shouldn't feel conscious because of your wheelchair or your Ataxia as you are a amazing human being and that what you are .it will get better it may take time but with the people around you should hold your head high,and shouldn't feel conscious or afraid of using public transport.

ciaranj123 profile image
ciaranj123

Don't worry too much about being shy, it's pretty normal if you have walking problems, glad you have your mum to help you through it.

AlphaWolves profile image
AlphaWolves in reply to ciaranj123

thx for the message

neta profile image
neta

Not sure "shy" is the right word here; maybe reluctance to be labeled. I think that all who have written before me, are correct but it's hard to be optimistic when people r staring. It's easy to say, "just ignore the stares" but hard to do. I don't think drs, other ataxians, or pts realize how hard this is for some. I totally understand. I cant imagine anyone (such as a potential employer) is thrilled to see anyone else ( especially a youngish person) with a walker or in a wheelchair. Having said that< I once witnessed a man boarding a NYC bus with a disabled child and a wheelchair. Though it took about an extra 10 minutes, no one in rough-tough NYC blinked or said a word. It was all very humane.

february profile image
february

Dear AlphaWolves, Welcome to this site, as you'll find wonderful people on here for support and understanding! Although you're shy, I'm glad you reached out! You're mum sounds amazing and very supportive! Try not to worry about how you're walking, as we're all in that boat with ataxia! I use a quad-cane when I leave my home. People I don't even know are very kind, holding doors open for me, etc. Also, at my age (61), I really don't care what other people think, as I just want to be safe (not fall)...,ha! Hugs, Rose ;o)

suzymoo2 profile image
suzymoo2

I used to be really shy when I was 1st diagnosed - I suppressed my personality (my thoughts and opinions), but it eventually leaked out...gradually. I'm 41 now and generally not fussy about what other people think. I am who I am because of Ataxia, not in spite of it - be YOU!

AlphaWolves profile image
AlphaWolves in reply to suzymoo2

Thanks for the morale support,i've just turned 17 and so far I'm still lacking

confidence,and have yet to make friends and start having a social life,but school was so difficult for me,so as much as i love my mum ,I would like to make a proper friend were i can go out and do things like other teenagers

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