Hiya people im 25 n have been diagnoised with at... - Ataxia UK
Hiya people im 25 n have been diagnoised with ataxia but they dnt no which type is it good they have found out while im younger?
Hi im 27 and have fa. Ive been diagnosed 14 years and yea I have found it helpful to be diagnosed younger. It means u can get help in place and equipment if need be to help make life easier. It wont stop it but it deff slows progression down. Unfortunately there is no cure but early diagnosis means u can get on research trials
HI LUCILU welcome to the club!!! i think it is good that you know what you have got as you can now find out what help and advise there is contact Ataxia UK and they will tell you where the support group is near you this website is most useful and between us all we hopefully get strength from hearing from other 'club' members It was 4 years before I was diagnosed and in that time I just didn't know what was wrong with me good luck ted
Recently diagnosed at 65 years old.
Regardless of age I think the important bit is having diagnosis.
When my private plan ran out at £1500 I paid additional £400.
I then went back to NHS (Dec 2013) for Lumber Puncture, as an aid to find cause.
8 months later still waiting (had the LP end of April)
Rodders
I am 57 with SCA type unknown. I had Lumber Puncture in my 30's and my symptoms were not causing me any problems like they are now. I had blood tests in Jan. am still waiting for results & another appointment for further tests?? Yes I also think it's important for a diagnosis
Keep positive, I can understand the frustration of waiting.
Berejena
Hi, Whilst its never good to find that you have ataxia I think that the younger you are the better as it does give you time to get all the support you may need in place + also relative youth gives you more energy to cope. I have had ataxia still unknown type, for over 20 years now finding out like you in my early 20's. Best bit of advice I can give is continue to live your life despite ataxia don't allow ataxia to rule you as its often all to easy to do -- there are always lots of people worst off than us ataxians!! Be strong, stubborn & positive + importantly find & take all the help you can be it benefits (PIP/DLA), Ataxia UK & support groups etc etc. Good luck.
can I ask what people do as a job with ataxia cos im a supply nurserynurse but decided to come out of childcare but I dont no what to do as I wanna do some thing decent still
