Living with a disability...: I have just come... - Ataxia UK

Ataxia UK

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Living with a disability...

HarryB profile image
HarryBAdministrator
8 Replies

I have just come across this and found it very interesting with lots of good advice.

huffingtonpost.com/2013/08/...

Harriet

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HarryB profile image
HarryB
Administrator
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8 Replies

Quite interesting :-)

I`ve got exercise bands connected to each corner of my hospital bed so that I can exercssie my arms, I have to wear a special glove on my hands as I can`t grip properly, the physio` is pleased with them. Some of the exerciserse also are for the stomach (I don`t do many yet as the arms are weak - but I`m getting there)

Physio`s now come twice a week to my home and another one (can`t remember what her title is ) comes once a fortnight to work on the leg muscles - so they don`t go....whatever she said they go, can`t remember, and that is hard work, sweat like heck doing them things.

Keep telling me to lose weight - easier said than done - I lost three stone when I was rushed into hospital in July from 18 stone to just under 15 in approx 5 to 7 days :-O

And they still complain :-)

It`s a funny old world.

See my neurologist this week - Friday 0945 Professor Chinnery at the RVI Hospital Newcastle, ambulance all arranged (not a proper ambulncae), one of those transport pick you up thingy ones. Not to many questions I hope my memorys not that good these days, as a matter of fact it`s hopeless :-(

Not to woyrr though, tme for a nice drink of hotmilky horliks.

:-)

wobblybee profile image
wobblybee in reply to

Oh John, also trying to lose weight! Join the club with the memory problem! Before you go

to the RVI, make a list and stand your ground. (did you like that?). xB

Nigel-2112 profile image
Nigel-2112

Quite interesting, thank you

wobblybee profile image
wobblybee

Thank you Harriet, it was really interesting and it confirms my own thinking. xB

february profile image
february

Wonderful information Harriet! Thanks for posting! ;o)

february profile image
february

I admire your positive spirit, as well as your sense of humor, John H.-kudos!!!! ;o)

Fifa profile image
FifaVolunteer

Hello Harriet

Very good, thank you.

Take care

Fifa

Litty profile image
Litty

Very good ... thanks : )

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