Are you a member of an Ataxia UK Branch or Suppo... - Ataxia UK

Ataxia UK

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Are you a member of an Ataxia UK Branch or Support Group?

HarryB profile imageHarryBAdministrator53 Voters

Please select one:

24 Replies
gossy profile image
gossy

no group held to far to travel

Andy-C profile image
Andy-C

I'm unawre of what the groups do or if it'd interest me, I dont believe there is a group nearby.... I live in Bexhill East Sussex and i understand the nearest group is in Tunbridge wells which is approx 30 miles away.

Wyndham profile image
Wyndham

There isn't one close enough. I live in East Barnet - anyone else nearby?

LOVELY_1 profile image
LOVELY_1 in reply to Wyndham

Is NorthWest London Branch to far. If its not and you would like to join details on Ataxia uk website

Wyndham profile image
Wyndham in reply to LOVELY_1

Thanks BUBBUB. I was aware of this but it doesn't work for Barnet

LOVELY_1 profile image
LOVELY_1 in reply to Wyndham

There are members living in Barnet who belong.

Razzy profile image
Razzy

I Believe The nearest one To Rotherham is in Sheffield and is held in the mornings, I would have to get 3 buses to get there as I do not drive and my husband is at work .

timk profile image
timkVolunteer

I am not a member of my local group because I do not feel particularly in need of support. My symptoms are mild and they do not interfere with my life. If they did, then perhaps I would think differently.

shirl18 profile image
shirl18

I would definately attend a group,however there seems to be none in the highlands,,my son,s condition has deterioated quickly+i am struggling to come to terms with it all,,,heaven knows how he feels!!!! Help

I am a member of the West of Scotland Ataxia support group. Our meetings are held every four weeks at Maryhill, Glasgow.

enazena profile image
enazena in reply to

My partner lives in Gourock so I guess this might be a good group for him

in reply to enazena

I'll find out when our next meeting is and let you know. Would be nice to see both of you . Iain

enazena profile image
enazena in reply to

Thanks for that :)

all the groups in my area are to far away/inaccessible by bus ect and as many people who do are in wheelchairs ect I do not want to see a potential future

wildone profile image
wildone

Sort of the opposite reason as Johnpa. I do not want to be a reminder of other member's potential future. I'd like to join a group because I don't know anyone with ataxia, but I wouldn't feel comfortable.

enazena profile image
enazena

Didn't realise that there were support groups. My partner was diagnosed with Ataxia two years ago and any support would be helpful

If you tell us where you are from Enazena then we will be able to tell you where your nearest Ataxia branch/support group may be. Iain

silkwood profile image
silkwood

Am a member of the Dorset Group who meet in Poole.I live in Wiltshire as of two years ago but have been going to Poole Group for four years as used to live in Wimborne.Usually have a good laugh as well.Not bothered about the future.Have got used to mourning the past.

Marie

juliaburton profile image
juliaburton

No support group near me. Im now going through the process of starting up a group

None that I know of!

Coxy123 profile image
Coxy123

Difficulty logging on, will try again

ddmagee1 profile image
ddmagee1

I live in the United States, not much support here!

rachie1959 profile image
rachie1959

don't know of any ...north lanarkshire

TimLowThom profile image
TimLowThom

US Citizen living in NY State