Asthma : So my peak flow is always... - Asthma UK communi...

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Asthma

Ca12345 profile image

So my peak flow is always reading this im age 25 male but evan when it is this high still feel short of breath anyone else have the same problem but doctors says not asthma????

17 Replies

Hi not all breathing problems are asthma. And there are also different forms of asthma. As a young person you might want to check out EILO, exercise induced Larangeal obstruction. If you are breathless when you exercise. Also heart problems can cause breathlessness so you may need to get that checked.

Another thing would be to get a respiratory physio to check your breathing. You could be breathless because of disordered breathing.

If you are concerned keep on going back to your doctor. Asthma is usually classified as being reversible even though it contains a wide range of types.

Many different things including obesity can cause breathlessness. Peak Flow is not the only measurement that is important. You may need to see a specialist if you are very worried

Cheers

R

As risabel says not all breathlessness is asthma, in fact most breathlessness probably isn't asthma.

As your various doctors (including respiratory specialists at specialist respiratory hospitals) and physios have explained, and as people have explained on here before, you need to focus on your dysfunctional breathing exercises and give it time. And go back to your physio about it because they are the ones who can help - but it will take time. Maybe ask your GP for some ways to cope with the ongoing stress/anxiety of having to deal with severe breathing pattern disorder (because it can't be easy) as stress and anxiety cause breathlessness themselves so that could well be adding to it.

Hi Ca12345. If your doctor says it's not asthma they should say what else it could be. I was in a similar situation where I was gasping for breathe in the consultation room and my GP said it wasn't asthma so I insisted on seeing a respiratory specialist. The respiratory specialist went on to diagnose atopic (allergic) asthma. I don't wheeze when having asthma problems which also tends to throw some GP's. Keep going back until you have a diagnosis, they can't deny you seeing a specialist if they don't know what's causing your breathing problems.

EmmaF91 profile image
EmmaF91Community Ambassador in reply to asthma_fighter

The respiratory specialist at the respiratory specialist hospital has told them what else it is… a severe breathing dysfunction. The hospital would have done multiple tests, and would have also made sure it was whilst they were symptomatic. Ca could ask for a 2nd opinion if they are so inclined, but they have had their shortness of breath cause explained to them.

Ca12345 profile image
Ca12345 in reply to EmmaF91

Cant evan sleep at night!!

twinkly29 profile image
twinkly29 in reply to Ca12345

Dysfunctional breathing isn't something that will only appear in daylight hours and when it's severe it's likely to affect you all the time.

Ca12345 profile image
Ca12345 in reply to twinkly29

Im struggling to evan get out bed in morning an get dressed because this breathing im only age 25 dont evan smoke

twinkly29 profile image
twinkly29 in reply to Ca12345

That doesn't mean it's not breathing dysfunction. You need to go back to your physio and tell them the problems you're having. They and you are the only ones who can help unfortunately.

Ca12345 profile image
Ca12345 in reply to twinkly29

How do you know have you suffered from dysfuncional breathing pattern???

twinkly29 profile image
twinkly29 in reply to Ca12345

Yes and respiratory physio is what treats it because it's about retraining breathing patterns which is what physio does. That takes time and persistence but does work. The more severe it is, the longer it will take (which would be the same as if someone had an infection - different treatment obviously but the worse it is, the longer it takes to get better).

Ca12345 profile image
Ca12345 in reply to twinkly29

Was yours just as bad waking you up and bad in morning sorry for all the question just nice to talk to someone who has gone through the same thin??

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Ca12345

Yes I have. And ditto to what twinkly said. Luckily mine was caught early and was more mild/moderate as it was a consequence to too many life threatening asthma attacks (me and the resus team were good friends when I was around 25 after 6+ months of them regularly seeing me 😅). But I still had to take a few months doing my physio to improve it and fix it. And the DB felt completely different to my asthma, to the point where i knew which attack had caused it to take hold. For whatever reason you have picked up a severe DB. It’s going to be hard work and a long process, but fixating on something that’s been ruled out won’t help. It comes across that you are very anxious about your breathing too, so it may be an idea to speak to someone about that too, as anxiety can trigger and worsen DBs esp if you hyperfocus on your breathing all the time, just an idea so you can attack the DB on both the physical (physio) and mental aspects.

Tugun profile image
Tugun in reply to Ca12345

An overnight stay at a respiratory and sleep clinic where they monitor your oxygen levels and heart rate etc might lead to some answers. The At Home ones are not as comprehensive.

Ca12345 profile image
Ca12345 in reply to Tugun

I had 3 night stay in addenbrooks and 1 night stay in papworth hospital but no answears

Ca12345 profile image
Ca12345 in reply to Ca12345

Just my physio says i have severe dysfuncional breathing pattern!!!

Tugun profile image
Tugun in reply to Ca12345

It's a pain when there's nothing definitive. If it is Dysfunctional breathing pattern, then one wonders what started it. I wish you all the best and hope you get better soon.

Read an interesting post the other day - this could be due to acid reflux or GERD maybe ask your doc about it - joinfilter.co/blog/shortnes...

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