Hi all --
following a hospital visit, I've been FT on prednisone, 2 inhalers and montelucast for the last 2 months and staying in an allergen-free tent, waiting for xolair for my allergic asthma (no progress so far).
Sleeping has been OK during the last month, once the drugs kicked in. However, for the last 3 days, for no apparent reason, I found that I cannot sleep in any position for more than 1 hr. After 1 hr on the left side, tightness in the lungs builds up and I wake up. I turn on the right, the tightness goes away within 1 min (feels as if liquid is draining out of the left lung), and comes back on the right side in 1 hr, then the cycle repeats. I know that I cannot sleep on the back and the belly anyway. Once I get up/sit up I feel mostly "OK" (can write, do basic housekeeping stuff, in a respirator). Nothing has changed in my routine, from what I can tell, except that I went to a respiratory hospital for an NO test (wore an FFP respirator the whole time), and started doing basic houskeeping (in a respirator, too) for 2-3 hrs at a time. Maybe the physical activity mobilizes the fluids, who knows.
Since I am already on prednisone, I do not think any additnioal drugs will help, except Xolair. Are there any "mechanical" rigs for sleeping while sitting fully upright? I am an engineer, so I can build anything, if this has been done before and has a chance of working. They have never found any major fluid build-up in my lungs, by any method (the usual smug "your lungs are clear!" insight), so I am not going to the hospital for this.