Starting xolair next week

[Ty80]

Just wondering what kind, if any, side effects people have experienced commencing xolair?

[hilary39]

Hey there! I've been on it for two years and it's been great. I've had far fewer courses of prednisone. The only side effect was the first month--I had a bit of trouble sleeping after the first shot. I think it's because histamine plays a big role in the sleep cycle. It went away after a few days though and I haven't had any issues since! (I can pass out in about three seconds these days

[Bwv945 in reply to hilary39]

Hi Hillary, I’ve only been on it for three months but am also noticing weight gain. I spoke to my nurse about it yesterday, she said weight gain isn’t listed as a side effect but there is anecdotal evidence. Like you I’m not 100% sure it’s associated with Xolair or whether I’m just allowing myself the extra piece of cake too often!

[B_price16]

Hi Ty80, I have been in Xolair injections for the last ten months and they seem to be benefiting me a lot. The side effects I seem to suffer most with is fatigue, aching and joint pain but this is generally for just a few days after the vaccination. One thing I have noticed happening is that I have put on quite a bit of weight during the last few months and I can’t be 100% sure it’s not the Xolair causing it or I’ve just gone really lazy.. hope this helps

[Bwv945]

Hi, I had my third dose of Xolair yesterday. The worst side effect for me is really severe fatigue for about 36 hours. I have also had a bit of stomach cramp and joint paint. However the past two weeks my chest has been more settled than it has been in years so I think it’s kicking in. Apparently it’s a slow burn and takes upto about three months for full effects to show.

Good luck x